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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Uptravi"

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Is Anyone On This Site Taking Letaris, Adcirca And Uptravi. I Just Started Uptravi And The Side Effects Are Awful!

Is Anyone On This Site Taking Letaris, Adcirca And Uptravi. I Just Started Uptravi And The Side Effects Are Awful!

A myPHteam Member said:

I take them both as well as sildenfil titrate down 9n the uptravi if your side effects are bothering you that much. That's what my CVS nurse did for me. Not everyone is meant to be at Max dose

posted 19 days ago

How Has The Side Effects Of The Medication Uptravi Affected You?

How Has The Side Effects Of The Medication Uptravi Affected You?

I am 79 and at stage 3 (800 mcg twice a day) of my Uptravi pathway medication and have experienced some side effects such as, muscle tightness in the shoulders and thighs, and slight headaches. These side effects usually began about 3 hours after I take each dose and lasts for about 3 hours. I am curious to know how this medication is affecting you, and if you are at your maximum dosage, do these side effects diminish or go away over time. I am also on Sildenafil and Opsumit.

A myPHteam Member said:

I couldnt tske it kept getting diarrhea

posted 16 days ago

Does Anyone Use The Remodulin Pump Where You Mix Your Medicine And Replace The Reseroir Every 3 Days? How Is It?

Does Anyone Use The Remodulin Pump Where You Mix Your Medicine And Replace The Reseroir Every 3 Days? How Is It?

A myPHteam Member said:

Yes. Been using it a short time now. Have had no problems so far. My daughter does all the work in putting it together. I cannot do it because I have reynauds disease & Scleroderma so my fingers… read more

posted 5 months ago

Medication Funding

Medication Funding

What is everyone doing now for funding their medications? I have PAH, am on uptravi, tadalafil and Ambrisentan.
All nonprofits I can find have stopped assistance funding for PAH. I just paid a copay of $3360.00 for my 1 month supply of uptravi. That's probably not going to work very well.🥺

A myPHteam Member said:

The foundation fund has just reopened or at least was open last week and pulmonary Hypertension drug copay is one of their branches. They will go back to Jan 1st and pay all pulmonary Hypertension… read more

posted 2 months ago

Hi Im Taking A Drug Called Uptravi

Hi Im Taking A Drug Called Uptravi

Now this drug makes me nauseous causes pain in my joints jaw camps in my stomach and feet when i stand up i fet dizzy along with diarrhea and im very tired.
Is this normal.

A myPHteam Member said:

I think dizziness is a cause for concern anytime.

posted 18 days ago

Medications You Take

Medications You Take

I need your advice on medications you are taken My Doctor gives me 2 mg Adempas three times a day and 10 mg Opsumit once a day. Looks like it’s does not work for me
My pressure is going up but she does not want to change medication. Does any of you take such medications as well ?

A myPHteam Member said:

Im taking lisinopril, Metoprolol and Esbriet and it seems to be makin my ailments better to deal with.

posted 5 months ago

Switching Meds

Switching Meds

Hi evereyone
I am on Letaris, Adcirca, & Oxygen Therapy for my PAH. Recently we added Uptravia which gave me horrible side effects, caused my SLE symptoms to increase 10 fold so I stopped that therapy. Had an appointment yesterday and my Pulmonary dr gave two options. One is Orenitram & the other is the inhaled Tyvaso (treprostinil). I was leaning toward the Tyvaso (which seems like a lot of work) but it can cause contraindications with my HBP & Diuretic meds. Anyway Im looking for feedback on… read more

A myPHteam Member said:

Tyvaso was crazy work with carrying the pump upright. I pushed for oral and it was granted.

posted 4 months ago

Tyvaso I’m Starting This Next Week Any Immediate Side Effects?

Tyvaso I’m Starting This Next Week Any Immediate Side Effects?

A myPHteam Member said:

Charlene have you found any Lateris? The pulmonologist office should have samples to help tide you over. Contact the manufacturer, they have an allotted amount of RX for donation and research. It… read more

posted 4 months ago

Any Member In Oregon?

Any Member In Oregon?

I'm curious how Medicare and Oregon state Medi help affects getting our medication?. I take Ambrisentan, Tadalafil, Uptravi and diuretics....

A myPHteam Member said:

Thanx

posted 9 months ago

I Have IPAH. Anyone Get The Covid Vaccine While On Uptravi, Tadalafil, Ambristenan? Side Effects?

I Have IPAH. Anyone Get The Covid Vaccine While On Uptravi, Tadalafil, Ambristenan? Side Effects?

A myPHteam Member said:

I am on all 3 of those medicines and got 2 shots of the Pfizer covid vaccine. I got through it without too much discomfort. I have diabetic neuropathy in my legs and feet and did have more pain than… read more

posted about 1 year ago