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I am 79 and at stage 3 (800 mcg twice a day) of my Uptravi pathway medication and have experienced some side effects such as, muscle tightness in the shoulders and thighs, and slight headaches. These side effects usually began about 3 hours after I take each dose and lasts for about 3 hours. I am curious to know how this medication is affecting you, and if you are at your maximum dosage, do these side effects diminish or go away over time. I am also on Sildenafil and Opsumit.
Yes. Been using it a short time now. Have had no problems so far. My daughter does all the work in putting it together. I cannot do it because I have reynauds disease & Scleroderma so my fingers… read more
What is everyone doing now for funding their medications? I have PAH, am on uptravi, tadalafil and Ambrisentan.
All nonprofits I can find have stopped assistance funding for PAH. I just paid a copay of $3360.00 for my 1 month supply of uptravi. That's probably not going to work very well.🥺
The foundation fund has just reopened or at least was open last week and pulmonary Hypertension drug copay is one of their branches. They will go back to Jan 1st and pay all pulmonary Hypertension… read more
I need your advice on medications you are taken My Doctor gives me 2 mg Adempas three times a day and 10 mg Opsumit once a day. Looks like it’s does not work for me
My pressure is going up but she does not want to change medication. Does any of you take such medications as well ?
I am on Letaris, Adcirca, & Oxygen Therapy for my PAH. Recently we added Uptravia which gave me horrible side effects, caused my SLE symptoms to increase 10 fold so I stopped that therapy. Had an appointment yesterday and my Pulmonary dr gave two options. One is Orenitram & the other is the inhaled Tyvaso (treprostinil). I was leaning toward the Tyvaso (which seems like a lot of work) but it can cause contraindications with my HBP & Diuretic meds. Anyway Im looking for feedback on… read more
Charlene have you found any Lateris? The pulmonologist office should have samples to help tide you over. Contact the manufacturer, they have an allotted amount of RX for donation and research. It… read more
I am on all 3 of those medicines and got 2 shots of the Pfizer covid vaccine. I got through it without too much discomfort. I have diabetic neuropathy in my legs and feet and did have more pain than… read more