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I read the pages of side effects for uitravi and made the decision NOT to take it. I take Ambrisentan and love it!!! Taken since 2019 with Tadalafil.
I need your advice on medications you are taken My Doctor gives me 2 mg Adempas three times a day and 10 mg Opsumit once a day. Looks like it’s does not work for me
My pressure is going up but she does not want to change medication. Does any of you take such medications as well ?
In the beginning I took sildenifil, Ambrisentan and uptravi. My doctor wasn’t satisfied with my progress so we dropped the uptravi and added the Remodulin pump. I really haven’t had any problems with… read more
I’m on tadalifil, Opsumit, and Uptravi. Is anyone else on those meds and how are you doing?
How are you doing on those three? I'm on Uptravi and Sildenafil (which is like tadalifil). They cause my BP to go low, and everytime I titrate up on Uptravi is hurt in my bones and muscles, jaw… read more
I am 79 and at stage 3 (800 mcg twice a day) of my Uptravi pathway medication and have experienced some side effects such as, muscle tightness in the shoulders and thighs, and slight headaches. These side effects usually began about 3 hours after I take each dose and lasts for about 3 hours. I am curious to know how this medication is affecting you, and if you are at your maximum dosage, do these side effects diminish or go away over time. I am also on Sildenafil and Opsumit.
Now this drug makes me nauseous causes pain in my joints jaw camps in my stomach and feet when i stand up i fet dizzy along with diarrhea and im very tired.
Is this normal.
Yes I take 1000 micrograms a day with same symptoms.
Explain more MeghanMcIntosh. Did you get to 1600 mcg, and going downhill means you had to cut back?
Hi guys I’m 19 years old with mild ph pressure of 40. I have taken adcirca it made me pass out, I’m currently on opsumit been on for 1 week and feels like breathing is not getting any better, maybe it’s too soon but my body reacts to medicine quick. I have group 1 PAH due to CHD that got closed. I also run low blood pressure so the medication is sometimes hard to find. Does anyone know or recommend any medication that I can ask my doc?? I see a lot of medication drops blood pressure and cause… read more
You should contact either the prescribing physician or pharmacist at the specialty pharmacy that provides your medications. All the medications have side effects. Some will lessen over time as your… read more
How can I help u?
What is everyone doing now for funding their medications? I have PAH, am on uptravi, tadalafil and Ambrisentan.
All nonprofits I can find have stopped assistance funding for PAH. I just paid a copay of $3360.00 for my 1 month supply of uptravi. That's probably not going to work very well.🥺
Have you contacted the PAN Foundation the cover PAH I believe also ask the manufacturer that makes it if they have a program.
Why is this suddenly a problem for me…I can not continue with my PT after hip replacement because of BP and SOB…any exertion is difficult and exhausting…
I am not getting a diagnosis or anything to… read more