Pulmonary Hypertension

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Medication

Medication

Hi guys I’m 19 years old with mild ph pressure of 40. I have taken adcirca it made me pass out, I’m currently on opsumit been on for 1 week and feels like breathing is not getting any better, maybe it’s too soon but my body reacts to medicine quick. I have group 1 PAH due to CHD that got closed. I also run low blood pressure so the medication is sometimes hard to find. Does anyone know or recommend any medication that I can ask my doc?? I see a lot of medication drops blood pressure and cause… read more

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A myPHteam Member said:

2 years and doing great!

posted 15 days ago
0 medium

How is your living arrangements for singles who are 40

How is your living arrangements for singles who are 40

I wonder if anyone who has pulmonary hypertension has been able to meet with others who are just as well wanting to have friendship's.

3 mini
A myPHteam Member said:

Ask your doctor if they know of a support group you can join. Some hospitals have group meetings for us folks with ph.

posted 19 days ago
1 medium

Does anyone else with ipah have chronic nausea?

Does anyone else with ipah have chronic nausea?

Nausea gets worse with activity and can feel pressure building in my body nothing helps but to throw up sometimes

7 mini
A myPHteam Member said:

I have that all the time since I’ve been on my pump with flolan. Nothing works to make it better either.

posted 19 days ago
9 medium

Cough

Cough

Do others have a cough with phlegm?

For just over a week now I have chest cough and keep coughing up phlegm. Is this to do with the pulmonary hypertension?

8 mini
A myPHteam Member said:

I have been coughing all the time lately with lots of phlegm and it can be normal with COPDand Ph But I didn’t have as much at all in beginning but do… read more

posted 22 days ago
4 medium

What is the best way to get the attention of PH doctors who do not have a sense of urgency in your case and how do you get them motivated???

What is the best way to get the attention of PH doctors who do not have a sense of urgency in your case and how do you get them motivated???

I was finay diagnosed with PH four months after it showed its ugly head when the pulseox would not go over 87 after rotator cuff surgery in October 2017. It was not actually diagnosed until I had a heart attack the end of January 2018 even though I had been on oxygen 100% of the time since October 5th. The first meeting with my pulmonologist he referred me to a specialist team… read more

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A myPHteam Member said:

Ally, don't give up! Rest and go at it again. Just when you think there is no one out there that cares about you enough to find exactly what you need to… read more

posted 5 months ago
7 medium

What is Pulmonary Rehab ?

What is Pulmonary Rehab ?

2 mini
A myPHteam Member said:

They do help you learn how to breath correctly and you do slow and easy work outs, to build your strength. Insurance will cover some if not all if Dr.… read more

posted 7 months ago
9 medium

Exercise

Exercise

As a breast and bowel cancer survivor with AF and now PH I attend an hour long session each Friday ensuring that I exercise for the duration mainly concentrating on my legs. Recently Iwas diagnosed with Tendinosis in my hip. Would the exercise be responsible?

4 mini
A myPHteam Member said:

It's hard to do on oxygen. Any little bit you can do is a plus.

posted about 2 months ago
5 medium

Letairis - TAKING IT FOR 8 MONTHS NOW BUT CONSISTENTLY HAS LOWERED PLATELETS NOW 100

Letairis - TAKING IT FOR 8 MONTHS NOW BUT CONSISTENTLY HAS LOWERED PLATELETS NOW 100

does letairis can lower the platelets ? any remedy ? Combination of Letairis and Adcirca has lowered my pulmonary pressure from 80 to 45.

4 mini
A myPHteam Member said:

I take potassium & lascix whole one on s,s,t,&th & 1/2 on m, w, & fri

posted about 2 months ago
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