Connect with others who understand.

sign up log in
About myPHteam
Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Pulmonary thromboendarterectomy (PTE)"

reset

What Questions Should I Ask My Doctor? I Have Not Had A Diagnosis Of PH Yet.

What Questions Should I Ask My Doctor? I Have Not Had A Diagnosis Of PH Yet.

A myPHteam Member said:

Write your questions down? I find it helps with the problem you have. Also it helps your Dr help you. Blessings .

posted over 1 year ago

Balloon Pulmonary Angioplasty

Balloon Pulmonary Angioplasty

Has anyone with CTEPH undergone a balloon pulmonary angioplasty? I will be the first patient at the Mayo Clinic Jacksonville Florida and I am wondering what to expect if someone else has had this procedure.

A myPHteam Member said:

I have now undergone 3 BPA procedures which opened a total of 4 pulmonary arteries. My Oxygen sats are now usually 91-95 on room air and I did the 6… read more

posted about 1 month ago

Weird Feeling In Arms And Legs

Weird Feeling In Arms And Legs

Does anyone get a weird feeling in their arms and legs? I'm not quite sure how to describe it. It's like the blood feels cold. Not really a numbness. Just a weird feeling. I get that even when I'm laying down doing nothing. My doctor did not know what that was. I have my heart catheter on Friday. He said he would know more then, and will decide if I'm eligible for a thromboendarterectomy. My lung pressure was estimated 120-130.

A myPHteam Member said:

Had one a few years ago Hangin there Nt ad bad as you think Gd be with you

posted about 1 year ago

Where Do I Begin?? I Am New

Where Do I Begin?? I Am New

Can someone take me under there wing and help me learn how to use this. Newly diagnosed and scared and fragile!

A myPHteam Member said:

Grandmas I. Welcome to my team. We are all here for you so jump in and talk to us, we are all willing and needing someone to talk to. Stay well and keep… read more

posted 8 months ago

Opsumit

Opsumit

Can opsumit also be taken for secondary pulmonary hypertension? Also have copd emphysema,heart failure ? Have a lot trouble breathing.thank you

A myPHteam Member said:

I appreciate the posts. My doctor said I do not need that medication yet.

posted about 2 months ago

Does Anyone Have Auto-immune Issue Causing PH?

Does Anyone Have Auto-immune Issue Causing PH?

I recently tested positive for scleroderma associated with my PAH. Does anyone use medication for this?

A myPHteam Member said:

My cardiologist feels a lot of mine is due to Sjourns an auto immune disease which can also cause scleroderma.

posted about 2 months ago

How Do You Know What Stage Your Pah Is At

How Do You Know What Stage Your Pah Is At

I want to know how severe my pah is

A myPHteam Member said:

Pam
Ask your cardiologist what s tdd age you are in. He/she should know if you had a rhc done.

posted about 1 month ago