Has Anyone Had A Valve Replaced?

Right side of my heart is enlarged and they are saying I need valve replaced.

Need Dome Feedback On Vague Test Results

On 6/1 had several diagnostic tests. A nuclear stress test. And i believe a scan right after and about 3 hrs later. Also had echocardiogram and EKG. Result..told everything looked fine, have a valve reguritation.not sure what valve and some blockage in carotid arteries. But want to wait to put a stent in. No mention of treatment for valve reguritation. Only they want to see me in a year. To me this is scary. Im 72 and dont want to have a stroke or HA before anything is done. The do not… read more

Exercise

My Question is i have 2 mechanical heart valves .one is 20 years old and i have sob on exertion see dr Harry Steinberg said i have asthma and nasal drip what does tha have to do with ph?

Hip Replacement Surgery

I need a right hip replacement. My lung Dr tells me i can not have surgery becausei will die on table because intubation, anesthesia will blow my lungs out. Has anyone else been told this???

Does Anyone Else Get Extremely Short Of Breath And Experience Pain When You Bend Over?

How Do You Deal With This Extreme Fatigue?

I have been diagnosed with Scleroderma and am not sure if I have pulmonary problems. I usually work out on a stationery bike for 1/2 hour, 3x a week. On those days I can’t do anything else. Most other days, I can do one thing a day, such as laundry, vacuuming, etc. I’m asleep by 2 pm and seldom am able to visit with friends. I am grateful to be alive and still work on my calligraphy which helps calm me down. Has anyone explored other avenues that might be causing the fatigue other than pulmonary… read more

How Has Orenitram Worked For You?

I am using remodulin sub q. I have had such good results reducing pressures that my doctor may switch me to pill form which is Orenitram. I do worry though as i hear it is not as effective at reducing pressures. How has it worked for you?

Medications You Take

I need your advice on medications you are taken My Doctor gives me 2 mg Adempas three times a day and 10 mg Opsumit once a day. Looks like it’s does not work for me
My pressure is going up but she does not want to change medication. Does any of you take such medications as well ?

Fatigue Shortness Of Breath And Weight Gain With PH

Since being diagnosed with PH a little over a year ago I find myself constantly tired and almost always short of breath, even when doing simple things like tying my shoes, climbing stairs getting out of a chair short walks among other things. Sometimes I even feel short of breath when just sitting at my office? Once I started using my CPAP machine, it seemed to help, but now that I've been using it for almost a year, it doesn't seem to be making much of a difference anymore? I'm 66 and was… read more

How Do You Get A Right Heart Catheterization When They Say There Is No Need For One?

I definitely need to know what to do in order to make the specialist listen to me, especially for a right heart catheterization?? How long before anyone here was diagnosed?