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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Atrial septostomy"

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Has Anyone Or Know Anyone Who Has Had An Atrial Septostomy

Has Anyone Or Know Anyone Who Has Had An Atrial Septostomy

A myPHteam Member

A surgeon puts a catheter with a balloon on the tip through the wall between the upper chambers (atria) of the heart to make a hole. This allows blood to pass from the right side of the heart to the… read more

Atrial Septostomy

Atrial Septostomy

My grandson who is 7 has Pulmonary Arterial Hypertension and has had this done 1month ago. His doctor told us that they do this in children to stay ahead. Is this true?

A myPHteam Member

Good luck and Blessings. My family has widow makers. Silent heart trouble

Has Anyone Else Been Diagnosed With Pulmonary Arterial Hypertension? I've Noticed That Most Everyone Say That They've Got PH.

Has Anyone Else Been Diagnosed With Pulmonary Arterial Hypertension? I've Noticed That Most Everyone Say That They've Got PH.

A myPHteam Member

I see my cardiologist on Dec. 4th for a second right heart catherization. I had that test in Jan. when I was diagnosed, but by June some of my tests results looked good and some not so much… read more

Sotatercept

Sotatercept

Have anyone here been involved in the Sotatercept trial? Did you have any adverse effects?

Heart Pounding

Heart Pounding

over the past 6 days or so I've noticed my heart beating hard. It last 1 to 15 minutes and goes on and off throughout the day. It didn't do this while I was exercising yesterday, only at rest or standing in the kitchen working on stuff. I have no Ph symptoms yet and don't find heart beating hard as one. It's not beating fast just hard enough to definitely notice my chest is beating. I do have appointment to see my primary tomorrow and it's on my list of questions.
Any ideas?
Mary

A myPHteam Member

Mary669: Have you been dx. with A Fib = Atrial Fibralation ?? I ask because that is an irregular heartbeat and many of us with PH do have it. The interesting thing is all the females in my family… read more

PAH Clinical Trials

PAH Clinical Trials

Has anyone been on or is participating in a clinical trial for PAH? If so, did they work well for you?

A myPHteam Member

Hmalohmery good morning
Thanks for the hug. Most appreciated. Hope your day goes well. Hugs and prayers.

Does Anyone On Here Have Info Regarding The Mayo Clinic Treating PAH? Thank You In Advance

Does Anyone On Here Have Info Regarding The Mayo Clinic Treating PAH? Thank You In Advance

A myPHteam Member

Well I live in Tucson and eye doctor at the Mayo clinic in Scottsdale and in Phoenix and I can clearly tell you that I have been born with a complex congenital heart defect and I was premature and had… read more

Adempas

Adempas

Hi I have PH and live at 6000 feet elevation and my doctor wants to put me on Adempas if I moved to sea level would that make my Breathing easier

A myPHteam Member

I usually live at 2000ft elevation, but this year, I have had the opportunity to live at sea level I've tried to call him but he often doesn't get phone calls. When I go visit my cat, I have a harder… read more

How Long Do The Side Effects Of Tadalafil Last

How Long Do The Side Effects Of Tadalafil Last

The hot flashes and flushing from tadalafil is awful. Worse than menopause. I was diagnosed Jan 2021. On tadalafil since March of 2021. Still have terrible hot flashes. Actually wakes me up at night still.

Does it ever get better. I know it’s working SOB is better last set of labs and tests were great. Also on Opsumit as of Dec 2021 ( changed from Bosentan Mar 2021 to Dec 2021). Added Uptravi March 2022. Still titrating only at 400mcg in am and 600mcg at night. The side effects are no joke… read more

A myPHteam Member

I just started the remodulin iv form, is that what u are thinking about?