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Top 10 Search Results for "Atrial septostomy"

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Atrial Septostomy

Atrial Septostomy

My grandson who is 7 has Pulmonary Arterial Hypertension and has had this done 1month ago. His doctor told us that they do this in children to stay ahead. Is this true?

A myPHteam Member said:

Good luck and Blessings. My family has widow makers. Silent heart trouble

posted over 1 year ago

PAH Clinical Trials

PAH Clinical Trials

Has anyone been on or is participating in a clinical trial for PAH? If so, did they work well for you?

A myPHteam Member said:

Hmalohmery good morning
Thanks for the hug. Most appreciated. Hope your day goes well. Hugs and prayers.

posted 4 months ago

ExerciseWHAT IS THE BEST EXERCISE

ExerciseWHAT IS THE BEST EXERCISE

A myPHteam Member said:

Check on bipaps. With continuous pressure of cpap, I cant exhale and felt like I was smothering at night. Finally got changed back to my bipap 2 weeks… read more

posted 7 months ago

Does Anyone Else Experience Chest Pains?

Does Anyone Else Experience Chest Pains?

I have discussed this with my doctor and he don't think its related to the pulmonary arterial hypertension. I was just wondering what others thought and what steps you have taken.

A myPHteam Member said:

I ended up in the ER by ambulance recently for chest pain. It hurt for a good 45 min before I called. I kept thinking it would go away. It wasn’t pain… read more

posted 16 days ago

Does Anyone Have Auto-immune Issue Causing PH?

Does Anyone Have Auto-immune Issue Causing PH?

I recently tested positive for scleroderma associated with my PAH. Does anyone use medication for this?

A myPHteam Member said:

My cardiologist feels a lot of mine is due to Sjourns an auto immune disease which can also cause scleroderma.

posted about 2 months ago

Does Anyone Else Have Chest Pain With Their PH?

Does Anyone Else Have Chest Pain With Their PH?

I have chest pain, mostly on the left side, and shortness of breath with slight movement. Sometimes it goes away in a few minutes but it usually stays several hours. Sometimes I wake up with it. Does anyone else experience this? If so, how do you manage it?

A myPHteam Member said:

Yes me too have emphysema moderate upper lobe left lung collapsed feeling almost every time on ultibro and ventolin.

posted 4 days ago

Concerning Measurements

Concerning Measurements

In 2013, when I was diagnosed my bp was thru the roof after the left heart Cath, I immediately was prescribed sidenifil (I now take 3 - 3times a day) last week Kaiser has me redoing all the normal tests to evaluate my severity. With the 6min walk test I passed with flying colors 98% oxgyen super exciting for me since the one I did last year I got dizzy and had to stop & take a 5sec break and restart. My BP is 130/75 consistently. I feel good more than bad lately, I used to pass out or… read more

A myPHteam Member said:

Yes you should be concerned. Pressure in lungs should be 25 or lower to be normal. My pressure was 43 one time and 38 one time and 47 another time.Dr… read more

posted 7 months ago

Is Anybody On Volibris - Ambrisentan

Is Anybody On Volibris - Ambrisentan

My ph team are putting me on volibris because the pressure is to high in my right side of heart it is 64 but I also have fibrosis which is mild and stable and this tablet can flare up my fibrosis so not to keen to take, not sure what to do. Have been told I have to take a gamble as it can’t stay this high ? Any input would be grateful !

A myPHteam Member said:

Carol Henderson
I suggest you look up PH on your computer or phone. Tons of info out there. Don't be surprised by what you read. It's non curable but… read more

posted 7 months ago