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Pulmonary Hypertension

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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Is Tracleer Available In Canada And Covered Under Private Drug Plans?

Is Tracleer Available In Canada And Covered Under Private Drug Plans?

A myPHteam Member said:

Yes, Tracleer is available in Canada. I was on it but was switched to Volibris. While I was on it my Blue Cross Medavie would paid for it if my NS… read more

posted over 2 years ago

I Don’t Understand PH. My Husband Had A Liver Transplant 7/16

I Don’t Understand PH. My Husband Had A Liver Transplant 7/16

Never had pressure before transplant. His pressure is 45 in right ventricle. I can explain all about transplant don’t understand PH. Thank you Susan Bleacher

A myPHteam Member said:

So sorry about your husband. Hope he is doing well. Our daughter was on a waiting list she didn't make it. Take care of each other and God Bless you… read more

posted over 1 year ago

Has Anyone Tried Stem Cell Therapy For PH?

Has Anyone Tried Stem Cell Therapy For PH?

A myPHteam Member said:

My understanding is that they haven't gotten that far yet. Apparently there are companies out there who say they do them, with "some" success, I do not… read more

posted over 2 years ago

Has Anyone Taken Or Are Taking Daliresp 500 For Copd

Has Anyone Taken Or Are Taking Daliresp 500 For Copd

right now im on trelegy i a day &nebulizer 2 time a ,day my Dr sats i might do better with adding this,but im concerned about the side effect. thanx!!!!

A myPHteam Member said:

DmDeSantis welcome to my team. We all care for and will support you in any way. The meds you are on are wonderful. I am on them too with NO side… read more

posted about 1 month ago

What Does It Mean When You Pee Blood And Chunks And Urine Smeels

What Does It Mean When You Pee Blood And Chunks And Urine Smeels

A myPHteam Member said:

I would strongly suggest that if this is happening to you, to contact your doctor as soon as possible. This is not normal and it is best to find out… read more

posted 4 months ago

Iloprost

Iloprost

anyone on iv iloprost. What are some of the side effects. My daughter has lost a lot of weight, loss of appetite and vomiting. She initially was doing ok - after a few months, lost a lot of weight and feels extremely tired.

A myPHteam Member said:

In sorry

posted over 2 years ago

Does Blood Thinning Drugs Make Your Energy Level Low..?

Does Blood Thinning Drugs Make Your Energy Level Low..?

I was on two different types of blood thinner,warfarin for about 4 days,but because of where I live,the monitoring was a problem,so the doctor switched me to xarelto,I was diagnosed with Afib,and needed to keep my blood at a certain level..both blood thinner drugs made me so sick and exhausted,I couldn't even get out of bed..I stopped taking xarelto and put myself on low dose aspirin..today I have a bit of energy to finish filling out My PH..

A myPHteam Member said:

I have been on Xarelto since it became available and have never had a problem with it causing low energy, in fact I have never had any problems with it.… read more

posted almost 2 years ago

Letairis

Letairis

I was told by a clinical pharmacist that the effects of Letairis would not be noticed until 4-6 weeks. Is this accurate?

A myPHteam Member said:

I took Latairis for three months and it almost killed me!! It made me very ill and almost an invalid! My condition started deteriorating shortly after I… read more

posted 9 months ago
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