Never had pressure before transplant. His pressure is 45 in right ventricle. I can explain all about transplant don’t understand PH. Thank you Susan Bleacher
Where in west uk if have underlying conditions as no assistance & Function made worse by breathing & them eg: temporary kyphosis spasticity relating to targetted antibiotics for utis neurogenic bladder, endemetriosis & spina bifida abnormall EEG ?causing CFS / fibro in weaker area affectd by A-fib & weak heart pumping & low thyroids [ genetic females] diabetes 1 on both sides too [ male twin cousins] as well as hormonal.autoimmune ,heart stroke
Family of pharnacists &… read more
He was born past due and weighed 12.7 pounds. He had low blood sugar. He was diagnosed later in the day and was transferred to a better hospital that could give him the medication he needed. Does anyone have experience with new born PH? Im worried he didnt get enough oxygen to his brain before they caught it.
My ph team are putting me on volibris because the pressure is to high in my right side of heart it is 64 but I also have fibrosis which is mild and stable and this tablet can flare up my fibrosis so not to keen to take, not sure what to do. Have been told I have to take a gamble as it can’t stay this high ? Any input would be grateful !
I was told by a clinical pharmacist that the effects of Letairis would not be noticed until 4-6 weeks. Is this accurate?
anyone on iv iloprost. What are some of the side effects. My daughter has lost a lot of weight, loss of appetite and vomiting. She initially was doing ok - after a few months, lost a lot of weight and feels extremely tired.
I have PH and also COPD, ILD and rheumatoid arthritis. I am on Letairis for the PH, Spiriva and Breo for lungs and Celebrex for arthritis. All along I have assumed that the SOB when exerting myself too much, or bending over, is from lung issues and the pounding heart is the PH, but could ALL of these symptoms be PH? I'm on 3 liters O2 for exercising and 2 at night. How can I know what meds are working for what problem? I've got checkups with heart and lung docs at the end of May… read more