He was born past due and weighed 12.7 pounds. He had low blood sugar. He was diagnosed later in the day and was transferred to a better hospital that could give him the medication he needed. Does anyone have experience with new born PH? Im worried he didnt get enough oxygen to his brain before they caught it.
My ph team are putting me on volibris because the pressure is to high in my right side of heart it is 64 but I also have fibrosis which is mild and stable and this tablet can flare up my fibrosis so not to keen to take, not sure what to do. Have been told I have to take a gamble as it can’t stay this high ? Any input would be grateful !
Never had pressure before transplant. His pressure is 45 in right ventricle. I can explain all about transplant don’t understand PH. Thank you Susan Bleacher
I was diagnosed with SLEEP APNEA and IPAH but dr says the sleep apnea did not cause my PAH
How can he be so sure when its the only thing they picked up ??
anyone on iv iloprost. What are some of the side effects. My daughter has lost a lot of weight, loss of appetite and vomiting. She initially was doing ok - after a few months, lost a lot of weight and feels extremely tired.
I was on two different types of blood thinner,warfarin for about 4 days,but because of where I live,the monitoring was a problem,so the doctor switched me to xarelto,I was diagnosed with Afib,and needed to keep my blood at a certain level..both blood thinner drugs made me so sick and exhausted,I couldn't even get out of bed..I stopped taking xarelto and put myself on low dose aspirin..today I have a bit of energy to finish filling out My PH..