Connect with others who understand.

sign up log in
About myPHteam

Pulmonary Hypertension

Questions + Answers

Don't see your question? ask question
View:

I Hear Some Medications Aren't As Good As Others. What About HCTZ?

I Hear Some Medications Aren't As Good As Others. What About HCTZ?

I have heard Lisinopril isn't as good as other meds. I wondering about HCTZ because it has Lisinopril in it. I have been taking HCTZ for about 5 years. Can you tell us a little about the meds?

Does Anyone Have A Child Or Grand Child Born With PH? .

Does Anyone Have A Child Or Grand Child Born With PH? .

He was born past due and weighed 12.7 pounds. He had low blood sugar. He was diagnosed later in the day and was transferred to a better hospital that could give him the medication he needed. Does anyone have experience with new born PH? Im worried he didnt get enough oxygen to his brain before they caught it.

Is Anybody On Volibris - Ambrisentan

Is Anybody On Volibris - Ambrisentan

My ph team are putting me on volibris because the pressure is to high in my right side of heart it is 64 but I also have fibrosis which is mild and stable and this tablet can flare up my fibrosis so not to keen to take, not sure what to do. Have been told I have to take a gamble as it can’t stay this high ? Any input would be grateful !

Is Tracleer Available In Canada And Covered Under Private Drug Plans?

Is Tracleer Available In Canada And Covered Under Private Drug Plans?

A myPHteam Member said:

Yes, Tracleer is available in Canada. I was on it but was switched to Volibris. While I was on it my Blue Cross Medavie would paid for it if my NS… read more

posted about 2 years ago

I Don’t Understand PH. My Husband Had A Liver Transplant 7/16

I Don’t Understand PH. My Husband Had A Liver Transplant 7/16

Never had pressure before transplant. His pressure is 45 in right ventricle. I can explain all about transplant don’t understand PH. Thank you Susan Bleacher

A myPHteam Member said:

So sorry about your husband. Hope he is doing well. Our daughter was on a waiting list she didn't make it. Take care of each other and God Bless you… read more

posted 10 months ago

Has Anyone Tried Stem Cell Therapy For PH?

Has Anyone Tried Stem Cell Therapy For PH?

A myPHteam Member said:

My understanding is that they haven't gotten that far yet. Apparently there are companies out there who say they do them, with "some" success, I do not… read more

posted about 2 years ago

Iloprost

Iloprost

anyone on iv iloprost. What are some of the side effects. My daughter has lost a lot of weight, loss of appetite and vomiting. She initially was doing ok - after a few months, lost a lot of weight and feels extremely tired.

A myPHteam Member said:

In sorry

posted almost 2 years ago

Wondering If Any One In Canada Has Traveled With 24/7 Oxygen And Got Travel Insurance To Cover For This Condition.

Wondering If Any One In Canada Has Traveled With 24/7 Oxygen And Got Travel Insurance To Cover For This Condition.

A myPHteam Member said:

Why is it that some are not treated for this, I have had for a few years and have never received treatment, when I asked the doctor I was told my kind… read more

posted 2 months ago
Continue with Facebook
Sign up with your email
Already a Member? Log in