I don’t understand PH. My husband had a liver transplant 7/16

Never had pressure before transplant. His pressure is 45 in right ventricle. I can explain all about transplant don’t understand PH. Thank you Susan Bleacher

Clinical trials

Where in west uk if have underlying conditions as no assistance & Function made worse by breathing & them eg: temporary kyphosis spasticity relating to targetted antibiotics for utis neurogenic bladder, endemetriosis & spina bifida abnormall EEG ?causing CFS / fibro in weaker area affectd by A-fib & weak heart pumping & low thyroids [ genetic females] diabetes 1 on both sides too [ male twin cousins] as well as hormonal.autoimmune ,heart stroke

Family of pharnacists &… read more

Wondering if any one in Canada has traveled with 24/7 oxygen and got travel insurance to cover for this condition.

Does anyone have a child or grand child born with PH? .

He was born past due and weighed 12.7 pounds. He had low blood sugar. He was diagnosed later in the day and was transferred to a better hospital that could give him the medication he needed. Does anyone have experience with new born PH? Im worried he didnt get enough oxygen to his brain before they caught it.

Is anybody on Volibris - ambrisentan

My ph team are putting me on volibris because the pressure is to high in my right side of heart it is 64 but I also have fibrosis which is mild and stable and this tablet can flare up my fibrosis so not to keen to take, not sure what to do. Have been told I have to take a gamble as it can’t stay this high ? Any input would be grateful !

Is Tracleer available in Canada and covered under private drug plans?

A myPHteam Member said:

Yes, Tracleer is available in Canada. I was on it but was switched to Volibris. While I was on it my Blue Cross Medavie would paid for it if my NS… read more

posted over 1 year ago  

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Has anyone tried stem cell therapy for PH?

A myPHteam Member said:

My understanding is that they haven't gotten that far yet. Apparently there are companies out there who say they do them, with "some" success, I do not… read more

posted over 1 year ago  

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Letairis

I was told by a clinical pharmacist that the effects of Letairis would not be noticed until 4-6 weeks. Is this accurate?

A myPHteam Member said:

I have exercise induced PAH. Where can I find up to date information on this condition. Thank you!

posted over 1 year ago  

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Iloprost

anyone on iv iloprost. What are some of the side effects. My daughter has lost a lot of weight, loss of appetite and vomiting. She initially was doing ok - after a few months, lost a lot of weight and feels extremely tired.

A myPHteam Member said:

In sorry

posted 12 months ago  

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What are specific symptoms of PH?

I have PH and also COPD, ILD and rheumatoid arthritis. I am on Letairis for the PH, Spiriva and Breo for lungs and Celebrex for arthritis. All along I have assumed that the SOB when exerting myself too much, or bending over, is from lung issues and the pounding heart is the PH, but could ALL of these symptoms be PH? I'm on 3 liters O2 for exercising and 2 at night. How can I know what meds are working for what problem? I've got checkups with heart and lung docs at the end of May… read more

A myPHteam Member said:

I too am on Breo and I was on Celebrex for my Osteoarthritis. I'm curious about you still being on Celebrex. As soon as I was diagnosed with PH and… read more

posted about 1 year ago  

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