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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Anyone Else Get Extremely Short Of Breath And Experience Pain When You Bend Over?
A myPHteam Member asked a question 💭
posted December 26, 2017
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A myPHteam Member

Thank you !!! Great info. I did not know that.

posted May 14
What Percentage Of People Are Cured, Vs. Misdiagnosis?
A myPHteam Member asked a question 💭

I was given 2 to 4 months to live, sent home on oxygen. I refused meds. That was 6 years ago. I pushed myself until I cried. Within one year, I was jogging. Today I mountain climb. Never give up.

posted February 19, 2020
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A myPHteam Member

That’s what I like to hear👍push yourself , don’t give up 😄

posted April 19
My Pulmomologist Said I Have PH And Has Not Given Me Anything To Help With Symptoms.
A myPHteam Member asked a question 💭

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my shoes or pick anything of any weight up I feel like I am going to… read more

posted June 22, 2019
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A myPHteam Member

If I were you I would try another pulhomologist who specializes in ph

posted 6 days ago
Does Anyone Else Have Chest Pain With Their PH?
A myPHteam Member asked a question 💭

I have chest pain, mostly on the left side, and shortness of breath with slight movement. Sometimes it goes away in a few minutes but it usually stays several hours. Sometimes I wake up with it. Does anyone else experience this? If so, how do you manage it?

posted November 28, 2017
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A myPHteam Member

Millo7020 thanks for the hug most appreciative hope you have a good evening and not hugs and prayers

posted May 23
What Is Purse Breathing?
A myPHteam Member asked a question 💭

True story: for years when I would be sob staff at the varied places I have lived would loudly tell me to breathe in through my nose & out through my mouth. Then a few would be a little more descriptive & say "smell the flowers & blow out the candles". It was not until I came here that I heard "purse breathing". Now it has a name. I have not done it correctly for years. You can learn from my mistakes.

Deep breath in through your nose .. count to 2
PUCKER YOUR LIPS
SLOWLY exhale (goal at this… read more

posted December 19, 2021
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A myPHteam Member

Carol Lackey: This is correct-- but, in the beginning. I could not hold for7 & breathe out for 8. I do my breathing exercises everytime that I go to the bathroom. It is very important tome that Ido… read more

posted November 18, 2022
How Do I Find The Middle Ground So I Don't Get So Fatigued?
A myPHteam Member asked a question 💭

I'm learning that even the slightest stress causes me to get exhausted. Life is full of stress without even trying. I struggle to find that middle ground in handling the stress that normal life hands me and still be able to function. I am able to keep basic cleaning done and grocery shopping with my husband's help. But some 6days that gets to be too much when unexpected stress pops up.

posted April 23, 2019
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A myPHteam Member

Be honest with family and friends. Set boundaries for yourself and others. I had to step back some prepping my daughters wedding. God love her. She was dragging me from pillar to post. It was my fault… read more

posted May 20
Feeling Discouraged
A myPHteam Member asked a question 💭

Hi everyone
I was looking over MyChart (my medical records, test results, etc.) when I came across one of the ER doctor's notes from when I was in the ER a while back, and the doctor said I have pulmonary hypertension. When I saw my primary doctor, I told her of my recent discovery and me finding out that I have PH. She didn't seem too concerned & kinda brushed it off, so I didn't say anything more about it. A few months went by (without me being concerned about it. After all, my doctor… read more

posted June 5, 2022
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A myPHteam Member

Your primary, cardiologist are not specialists in pulmonary diseases. You need a pulmonologist to do tests to properly diagnose you. Don't wait much longer.....make the appointment and talk with the… read more

posted May 12
I Frequently Read About Seeing A PH Specialist. Thought If I Wanted More Info That Others May Also: See Below
A myPHteam Member asked a question 💭

yes, there are PH Specialists in the U.S., not every state!!

Go to:

PHassociation.org

This site should display the PH Care Centers that are certified with the qualified specialists that we seek. There is a drop-down screen on the right that will roll with your cursor till you find your state. City, State & contact info should pop up when clicked.

Hope this helps Someone, PatV.

posted December 12, 2021
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A myPHteam Member

You do know, your doctor should have a list of PH and PAH doctors available to them. If not in your state, any doctor that has the qualification needed for your care. Due to Epic they can communicate… read more

posted 2 days ago
I Am New To PH And Now That Winter Has Arrived I Find It A Lot Harder To Breath Outside. Has Anyone Found Anything I Can Do To Help With It?
A myPHteam Member asked a question 💭

I live in Canada and now that winter has arrived I have noticed it really hard to take a deep breath or walk very far outside in the cold air. I am not on oxygen is there anything that helps when you are outside?

posted November 5, 2017
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A myPHteam Member

... BarbAnderson I guess that foods that enrich blood oxygen, red beets for example, may be a real adjacent factor to improve breathing quality

posted February 11, 2021
Do You Know What Type Of PH You Have And How Severe You Have It. How Did You Find Out?
A myPHteam Member asked a question 💭

My pulmonologist last advice for me after seeing my cardiologist was if your feeling bad go to the DR. If your feeling worse go to the ER. If your feeling more tired go see my PCP. Ill see you at your next appointment. I don't know how bad I am with PAH.

posted January 15, 2022
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A myPHteam Member

Well thank you Tom that was very nice and a big hug back at you my friend

posted 7 days ago
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