I was formally dx at the Mayo Clinic in Rochester. 2018. 4-5 liters 02 continuous. SOB with/without activity. Chest pain more on then off these days. Post heart cath. we met with transplant surgeon… read more
I was given 2 to 4 months to live, sent home on oxygen. I refused meds. That was 6 years ago. I pushed myself until I cried. Within one year, I was jogging. Today I mountain climb. Never give up.
I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my shoes or pick anything of any weight up I feel like I am going to… read more
Hi. I was diagnosed with ph in February 2021 and I have been on oxygen every since. The doctors performed several tests including the stress test, heart cath, and blood gas which measured the amount… read more
True story: for years when I would be sob staff at the varied places I have lived would loudly tell me to breathe in through my nose & out through my mouth. Then a few would be a little more descriptive & say "smell the flowers & blow out the candles". It was not until I came here that I heard "purse breathing". Now it has a name. I have not done it correctly for years. You can learn from my mistakes.
Deep breath in through your nose .. count to 2
PUCKER YOUR LIPS
SLOWLY exhale (goal at this… read more
I do it when taking my blood pressure too....
I'm learning that even the slightest stress causes me to get exhausted. Life is full of stress without even trying. I struggle to find that middle ground in handling the stress that normal life hands me and still be able to function. I am able to keep basic cleaning done and grocery shopping with my husband's help. But some 6days that gets to be too much when unexpected stress pops up.
JANE, SO PROUD OF YOU!!! Each time you do this it will get easier on you to do this. I have found that most stores are now setting times for us older folks to do our shopping. I also have found that… read more
I live in Canada and now that winter has arrived I have noticed it really hard to take a deep breath or walk very far outside in the cold air. I am not on oxygen is there anything that helps when you are outside?
... BarbAnderson I guess that foods that enrich blood oxygen, red beets for example, may be a real adjacent factor to improve breathing quality
what if O2 saturation drops below 90? Stop? Keep exercising anyway? Reduce intensity?
Always follow your Dr. Advice. Everybody has a difference in other conditions not just PH that can affect our bodies.
I have chest pain, mostly on the left side, and shortness of breath with slight movement. Sometimes it goes away in a few minutes but it usually stays several hours. Sometimes I wake up with it. Does anyone else experience this? If so, how do you manage it?
I have chest pain as well. Not daily but 50% of the time. Mine is right in the center of my chest. When I have it I am extremely tired......like right now. The rest of my day will be spent on the… read more
yes, there are PH Specialists in the U.S., not every state!!
Go to:
PHassociation.org
This site should display the PH Care Centers that are certified with the qualified specialists that we seek. There is a drop-down screen on the right that will roll with your cursor till you find your state. City, State & contact info should pop up when clicked.
Hope this helps Someone, PatV.
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