Pulmonary Hypertension

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7 medium

Does anyone else get extremely short of breath and experience pain when you bend over?

Does anyone else get extremely short of breath and experience pain when you bend over?

1 mini
A myPHteam Member said:

I get short of breath when bending over but also get cramp like feelings which takes my breath till it stops. I use only 2lt O2 24/7 and a bi-pap when… read more

posted 12 days ago
6 medium

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work.
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my… read more

4 mini
A myPHteam Member said:

Oh Marty this is such great NEWS!! Finally you will get some help You will probably have a lot of tests, 6 min walk PFT, (Pulmonary Function Test)… read more

posted 12 days ago
1 medium

I am new to PH and now that winter has arrived I find it a lot harder to breath outside. Has anyone found anything I can do to help with it?

I am new to PH and now that winter has arrived I find it a lot harder to breath outside. Has anyone found anything I can do to help with it?

I live in Canada and now that winter has arrived I have noticed it really hard to take a deep breath or walk very far outside in the cold air. I am not on oxygen is there anything that helps when you are outside?

8 mini
A myPHteam Member said:

hi use scarf to cover mouth and nose should help

posted 2 months ago
4 medium

Value of supplemental oxygen?

Value of supplemental oxygen?

My wife has PH and heart failure and easily becomes breathless. She’s been told that supplemental oxygen will not help. I find that hard to believe. Is that true??

8 mini
A myPHteam Member said:

Watch the fluid with heart failure

posted about 1 month ago
4 medium

I was having a stabbing knife feeling in my small intestine area and found a cure. Anyone else haveing these pains?

I was having a stabbing knife feeling in my small intestine area and found a cure. Anyone else haveing these pains?

After doing some research these pains are related to PH. My PH team said its not part of PH. I did my own research and found three articles referencing this. A recent study done on lab rats in Spain and another more detailedwrite up as well as an article from about 6 years ago stating this was an effect of PH. So the cure to getting rid of this side effect is to increase your probiotics. Start eating… read more

5 mini
A myPHteam Member said:

What???

posted 10 months ago
5 medium

Exercise

Exercise

what if O2 saturation drops below 90? Stop? Keep exercising anyway? Reduce intensity?

6 mini
A myPHteam Member said:

posted about 1 month ago
2 medium

Thoughts?

Thoughts?

I have a very hard time with meds to the point of my life of quality is more important than quantity of time. Medication is not going good.
I strongly believe in the power of God and believe that He is what has sustained me this far.
I’m open to more natural things.
Everyone has an opinion, this is just mine.
Just sharing my thoughts and not bashing anyone that thinks different.

0 mini
A myPHteam Member said:

Ally so sorry to hear that. It is so hard to not do the things we want to do. I have such a hard time saying no. And I might feel good and say yes then… read more

posted 3 days ago
8 medium

Is anyone using [[treatment:Sildenafil:59b7098bff29502bb8a490a5]] ? Trelegy?

Is anyone using [[treatment:Sildenafil:59b7098bff29502bb8a490a5]] ? Trelegy?

I was on Symbicort and Spiriva for years. I tried to get on a clinical trial for Trelegy 2 years ago but could not blow 25% lung function. Without meds I blow 13%. My pulmanary Dr. was part of the team and when it came on market I started using it. I LOVE IT! ! time in morning and I breath easy all day long. I still run low on o2 during strenuous activity, but I don't feel like a bear is squeezing me. In march I started on [[treatment:read more

9 mini
A myPHteam Member said:

When I went up to 75ml I went a bit funny,like dizzy very light headed & double vision,I told the doctors & have put me down to 50ml 3 times… read more

posted 2 months ago
8 medium

What are some of the moments you find your PH bothers you the most.

What are some of the moments you find your PH bothers you the most.

Taking a shower cause me to get SOB often.

3 mini
A myPHteam Member said:

Oh my I know the feeling. Showering is the worst and tAkes forever. I feel so wiped out when done. I have a stool but it's still a process . At least I… read more

posted 8 days ago
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