Pulmonary Hypertension

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My Pulmomologist said I have PH and has not given me anything to help with symptoms.

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work.
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my… read more

A myPHteam Member said:

Hi, what does it take to have your Doctor prescribe Oxygen is the question. It use to be easy to get Oxygen but the Government has recently changed the… read more

posted about 1 month ago

I am new to PH and now that winter has arrived I find it a lot harder to breath outside. Has anyone found anything I can do to help with it?

I am new to PH and now that winter has arrived I find it a lot harder to breath outside. Has anyone found anything I can do to help with it?

I live in Canada and now that winter has arrived I have noticed it really hard to take a deep breath or walk very far outside in the cold air. I am not on oxygen is there anything that helps when you are outside?

A myPHteam Member said:

I eat lettuce, no cheese

posted 2 months ago

Thoughts?

Thoughts?

I have a very hard time with meds to the point of my life of quality is more important than quantity of time. Medication is not going good.
I strongly believe in the power of God and believe that He is what has sustained me this far.
I’m open to more natural things.
Everyone has an opinion, this is just mine.
Just sharing my thoughts and not bashing anyone that thinks different.

A myPHteam Member said:

Amen. Moreover, im so glade that we can cast our cares on the Lord. More Prayers more Power amongs each other for each other. Healing is in the… read more

posted 4 months ago

I was having a stabbing knife feeling in my small intestine area and found a cure. Anyone else haveing these pains?

I was having a stabbing knife feeling in my small intestine area and found a cure. Anyone else haveing these pains?

After doing some research these pains are related to PH. My PH team said its not part of PH. I did my own research and found three articles referencing this. A recent study done on lab rats in Spain and another more detailedwrite up as well as an article from about 6 years ago stating this was an effect of PH. So the cure to getting rid of this side effect is to increase your probiotics. Start eating… read more

A myPHteam Member said:

What???

posted over 1 year ago

Is anyone using [[treatment:Sildenafil:59b7098bff29502bb8a490a5]] ? Trelegy?

Is anyone using [[treatment:Sildenafil:59b7098bff29502bb8a490a5]] ? Trelegy?

I was on Symbicort and Spiriva for years. I tried to get on a clinical trial for Trelegy 2 years ago but could not blow 25% lung function. Without meds I blow 13%. My pulmanary Dr. was part of the team and when it came on market I started using it. I LOVE IT! ! time in morning and I breath easy all day long. I still run low on o2 during strenuous activity, but I don't feel like a bear is squeezing me. In march I started on [[treatment:read more

A myPHteam Member said:

Hi I hope your tablets are working & I hope u will keep smiling & stay strong,tomorrow is another day,and there always new tablets coming out,so… read more

posted 7 months ago

How do I find the middle ground so I don't get so fatigued?

How do I find the middle ground so I don't get so fatigued?

I'm learning that even the slightest stress causes me to get exhausted. Life is full of stress without even trying. I struggle to find that middle ground in handling the stress that normal life hands me and still be able to function. I am able to keep basic cleaning done and grocery shopping with my husband's help. But some 6days that gets to be too much when unexpected stress pops up.

A myPHteam Member said:

Yes ma’am

posted about 2 months ago

Exercise

Exercise

what if O2 saturation drops below 90? Stop? Keep exercising anyway? Reduce intensity?

A myPHteam Member said:

When I drop below 90, I am instructed by my PH specialist to turn my oxygen up. I begin exercise higher than normal and turn up as needed. I do not stop… read more

posted 19 days ago

Does anyone else have chest pain with their PH?

Does anyone else have chest pain with their PH?

I have chest pain, mostly on the left side, and shortness of breath with slight movement. Sometimes it goes away in a few minutes but it usually stays several hours. Sometimes I wake up with it. Does anyone else experience this? If so, how do you manage it?

A myPHteam Member said:

Yes I have chest pain/pressure. I requested something for anxiety and my pulmonologist told me to loose weight and that will solve the problem. I’m… read more

posted 17 days ago
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