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Pulmonary Hypertension

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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Anyone Else Get Extremely Short Of Breath And Experience Pain When You Bend Over?

Does Anyone Else Get Extremely Short Of Breath And Experience Pain When You Bend Over?

A myPHteam Member said:

I was formally dx at the Mayo Clinic in Rochester. 2018. 4-5 liters 02 continuous. SOB with/without activity. Chest pain more on then off these days. Post heart cath. we met with transplant surgeon… read more

posted 2 months ago

What Percentage Of People Are Cured, Vs. Misdiagnosis?

What Percentage Of People Are Cured, Vs. Misdiagnosis?

I was given 2 to 4 months to live, sent home on oxygen. I refused meds. That was 6 years ago. I pushed myself until I cried. Within one year, I was jogging. Today I mountain climb. Never give up.

A myPHteam Member said:

Good for you

posted 5 months ago

My Pulmomologist Said I Have PH And Has Not Given Me Anything To Help With Symptoms.

My Pulmomologist Said I Have PH And Has Not Given Me Anything To Help With Symptoms.

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my shoes or pick anything of any weight up I feel like I am going to… read more

A myPHteam Member said:

Hi. I was diagnosed with ph in February 2021 and I have been on oxygen every since. The doctors performed several tests including the stress test, heart cath, and blood gas which measured the amount… read more

posted 8 months ago

What Is Purse Breathing?

What Is Purse Breathing?

True story: for years when I would be sob staff at the varied places I have lived would loudly tell me to breathe in through my nose & out through my mouth. Then a few would be a little more descriptive & say "smell the flowers & blow out the candles". It was not until I came here that I heard "purse breathing". Now it has a name. I have not done it correctly for years. You can learn from my mistakes.

Deep breath in through your nose .. count to 2
PUCKER YOUR LIPS
SLOWLY exhale (goal at this… read more

A myPHteam Member said:

I do it when taking my blood pressure too....

posted about 2 months ago

How Do I Find The Middle Ground So I Don't Get So Fatigued?

How Do I Find The Middle Ground So I Don't Get So Fatigued?

I'm learning that even the slightest stress causes me to get exhausted. Life is full of stress without even trying. I struggle to find that middle ground in handling the stress that normal life hands me and still be able to function. I am able to keep basic cleaning done and grocery shopping with my husband's help. But some 6days that gets to be too much when unexpected stress pops up.

A myPHteam Member said:

JANE, SO PROUD OF YOU!!! Each time you do this it will get easier on you to do this. I have found that most stores are now setting times for us older folks to do our shopping. I also have found that… read more

posted over 1 year ago

I Am New To PH And Now That Winter Has Arrived I Find It A Lot Harder To Breath Outside. Has Anyone Found Anything I Can Do To Help With It?

I Am New To PH And Now That Winter Has Arrived I Find It A Lot Harder To Breath Outside. Has Anyone Found Anything I Can Do To Help With It?

I live in Canada and now that winter has arrived I have noticed it really hard to take a deep breath or walk very far outside in the cold air. I am not on oxygen is there anything that helps when you are outside?

A myPHteam Member said:

... BarbAnderson I guess that foods that enrich blood oxygen, red beets for example, may be a real adjacent factor to improve breathing quality

posted over 1 year ago

Exercise

Exercise

what if O2 saturation drops below 90? Stop? Keep exercising anyway? Reduce intensity?

A myPHteam Member said:

Always follow your Dr. Advice. Everybody has a difference in other conditions not just PH that can affect our bodies.

posted 8 months ago

Does Anyone Else Have Chest Pain With Their PH?

Does Anyone Else Have Chest Pain With Their PH?

I have chest pain, mostly on the left side, and shortness of breath with slight movement. Sometimes it goes away in a few minutes but it usually stays several hours. Sometimes I wake up with it. Does anyone else experience this? If so, how do you manage it?

A myPHteam Member said:

I have chest pain as well. Not daily but 50% of the time. Mine is right in the center of my chest. When I have it I am extremely tired......like right now. The rest of my day will be spent on the… read more

posted 12 days ago

I Frequently Read About Seeing A PH Specialist. Thought If I Wanted More Info That Others May Also: See Below

I Frequently Read About Seeing A PH Specialist. Thought If I Wanted More Info That Others May Also: See Below

yes, there are PH Specialists in the U.S., not every state!!

Go to:

PHassociation.org

This site should display the PH Care Centers that are certified with the qualified specialists that we seek. There is a drop-down screen on the right that will roll with your cursor till you find your state. City, State & contact info should pop up when clicked.

Hope this helps Someone, PatV.

A myPHteam Member said:

I also had a phillips machine which gave me constant sinusitus runny nose expectorating Phlegm etc after that stsrted before i was put on oxygen my shortness of breath and condition has been getting… read more

posted 4 months ago
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