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Pulmonary Hypertension

Questions + Answers

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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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What Percentage Of People Are Cured, Vs. Misdiagnosis?

What Percentage Of People Are Cured, Vs. Misdiagnosis?

I was given 2 to 4 months to live, sent home on oxygen. I refused meds. That was 6 years ago. I pushed myself until I cried. Within one year, I was jogging. Today I mountain climb. Never give up.

posted over 2 years ago
A myPHteam Member said:

Good for you

posted 9 months ago

What Is Purse Breathing?

What Is Purse Breathing?

True story: for years when I would be sob staff at the varied places I have lived would loudly tell me to breathe in through my nose & out through my mouth. Then a few would be a little more descriptive & say "smell the flowers & blow out the candles". It was not until I came here that I heard "purse breathing". Now it has a name. I have not done it correctly for years. You can learn from my mistakes.

Deep breath in through your nose .. count to 2
PUCKER YOUR LIPS
SLOWLY exhale (goal at this… read more

posted 10 months ago
A myPHteam Member said:

I do it when taking my blood pressure too....

posted 7 months ago

My Pulmomologist Said I Have PH And Has Not Given Me Anything To Help With Symptoms.

My Pulmomologist Said I Have PH And Has Not Given Me Anything To Help With Symptoms.

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my shoes or pick anything of any weight up I feel like I am going to… read more

posted over 3 years ago
A myPHteam Member said:

MartyMeshek
Marty the more you know about PH the better it will be so take a look at all your tests
Your doctor probably has a patient portal and if so get connected with it and start from there
read more

posted 22 days ago

How Do I Find The Middle Ground So I Don't Get So Fatigued?

How Do I Find The Middle Ground So I Don't Get So Fatigued?

I'm learning that even the slightest stress causes me to get exhausted. Life is full of stress without even trying. I struggle to find that middle ground in handling the stress that normal life hands me and still be able to function. I am able to keep basic cleaning done and grocery shopping with my husband's help. But some 6days that gets to be too much when unexpected stress pops up.

posted over 3 years ago
A myPHteam Member said:

Ash I didn't even realize the stress was part of this. So just a little too much FYI I think Just here very recently I became very overwhelmed very full of anxiety and I noticed I was even being an… read more

posted about 2 months ago

I Am New To PH And Now That Winter Has Arrived I Find It A Lot Harder To Breath Outside. Has Anyone Found Anything I Can Do To Help With It?

I Am New To PH And Now That Winter Has Arrived I Find It A Lot Harder To Breath Outside. Has Anyone Found Anything I Can Do To Help With It?

I live in Canada and now that winter has arrived I have noticed it really hard to take a deep breath or walk very far outside in the cold air. I am not on oxygen is there anything that helps when you are outside?

posted almost 5 years ago
A myPHteam Member said:

... BarbAnderson I guess that foods that enrich blood oxygen, red beets for example, may be a real adjacent factor to improve breathing quality

posted over 1 year ago

Exercise

Exercise

what if O2 saturation drops below 90? Stop? Keep exercising anyway? Reduce intensity?

posted over 4 years ago
A myPHteam Member said:

Always follow your Dr. Advice. Everybody has a difference in other conditions not just PH that can affect our bodies.

posted about 1 year ago

Does Anyone Else Have Chest Pain With Their PH?

Does Anyone Else Have Chest Pain With Their PH?

I have chest pain, mostly on the left side, and shortness of breath with slight movement. Sometimes it goes away in a few minutes but it usually stays several hours. Sometimes I wake up with it. Does anyone else experience this? If so, how do you manage it?

posted almost 5 years ago
A myPHteam Member said:

I, too have regular chest pain. Some more severe then others. It is what took me to the ER the first time. PAH causes narrowing of the vessels to the heart. As these vessels narrow or thicken, they… read more

posted about 1 month ago

Feeling Discouraged

Feeling Discouraged

Hi everyone
I was looking over MyChart (my medical records, test results, etc.) when I came across one of the ER doctor's notes from when I was in the ER a while back, and the doctor said I have pulmonary hypertension. When I saw my primary doctor, I told her of my recent discovery and me finding out that I have PH. She didn't seem too concerned & kinda brushed it off, so I didn't say anything more about it. A few months went by (without me being concerned about it. After all, my doctor… read more

posted 4 months ago
A myPHteam Member said:

Yes, you would probably take heart meds for the rest of your life. I have been on them for 29 years! Meds for anxiety help but they do not help the heart itself. Advances are constantly made for your… read more

posted about 3 hours ago
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