Pulmonary Hypertension

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7 medium

Does anyone else get extremely short of breath and experience pain when you bend over?

Does anyone else get extremely short of breath and experience pain when you bend over?

1 mini
A myPHteam Member said:

Yes, when I bend over while sitting down and laying down, reach over to get something from night stand.. extreme pain, and trouble breathing..lasts a… read more

posted about 10 hours ago
0 medium

Does anyone else have chest pain with their PH?

Does anyone else have chest pain with their PH?

I have chest pain, mostly on the left side, and shortness of breath with slight movement. Sometimes it goes away in a few minutes but it usually stays several hours. Sometimes I wake up with it. Does anyone else experience this? If so, how do you manage it?

2 mini
A myPHteam Member said:

Yes i get sob but i dial down my activity

posted 10 days ago
0 medium

Dizziness possibly vestibular

Dizziness possibly vestibular

Not sure if the dizziness I'm experiencing is just a part of my getting older or something related to the entire lung problem. I've had benign positional vertigo occasionally but only when lying down. I check my oxygen regularly to make sure I"m in compliance but I fear falling. The osteoarthritis in my hands and knees just adds fuel to the entire balance issue. That 'fear' word has crept back into my vocabulary again and I don't want to think something vestibular has been caused by… read more

9 mini
A myPHteam Member said:

I am so glad that you are able to adjust.
I see those rollators and am thinking about getting one. I het more unsteady, and my cane is not cutting it.… read more

posted about 1 year ago
7 medium

What lifestyle changes have you made since becoming diagnosed?

What lifestyle changes have you made since becoming diagnosed?

3 mini
A myPHteam Member said:

I retired shortly after my diagnosis and was lucky enough to get a couple of RVing years in before the 24/7 oxygen requirement became to big a hurdle.… read more

posted 23 days ago
9 medium

Heart-lung transplant

Heart-lung transplant

I am on 10 liters of oxygen...is anyone on that amount.

3 mini
A myPHteam Member said:

No Im on 6 sometimes 7. I am on the transplant list for and lung transplant but still trying to decide if its worth it. I am on veletri 24/7 which is a… read more

posted 7 months ago
0 medium

Do other people with Pulmonary Hypertension experience feelings of isolation especially during the holidays?

Do other people with Pulmonary Hypertension experience feelings of isolation especially during the holidays?

I've been blessed with some improvements in my health but still find myself fatigued quite often especially at times when I want to be more active. I know the COPD and accompanying PH won't go away. I know they will probably get worse. I'm slower than I was, more SOB than I was, but I'm still trying to function without slowing my family and friends down. It is at those times when I feel "left behing" and… read more

2 mini
A myPHteam Member said:

I,too, feel isolated but I don’t know how to change it. I used to visit my closest sister, who lives across the continent yearly. But, since being… read more

posted 2 months ago
3 medium

Please send me information on the PH symptoms and if you can have both PH and COPD

Please send me information on the PH symptoms and if you can have both PH and COPD

What is the treatment for the PH and can you also have COPD with the PH ?? I was told I have both. And now suppose to be on oxygen 24/7. I can not return to the job I had and use oxygen. I need to work to support my self.

2 mini
A myPHteam Member said:

I am on oxygen 24/7 I just recently stopped working I have portable carry on one that is good and at my job I was allowed to have a oxygen machine there… read more

posted 3 months ago
4 medium

Pressure % in heart/lung valve

Pressure % in heart/lung valve

Does anyone know how high the pressure % can go in a person with PH? The doctor said the other day that mine were over 100 so I asked how high can they go and he sid he didn't know but said mine were way too high and he's sending me to a PH speciaist.

2 mini
A myPHteam Member said:

My dr told me they r supposed to b in thr 50s but because the left side of my heart is fine it was caught at a gud time but wouldnt tell me how high it… read more

posted about 1 year ago
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