Pulmonary Hypertension

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Does anyone else have chest pain with their PH?

Does anyone else have chest pain with their PH?

I have chest pain, mostly on the left side, and shortness of breath with slight movement. Sometimes it goes away in a few minutes but it usually stays several hours. Sometimes I wake up with it. Does anyone else experience this? If so, how do you manage it?

A myPHteam Member said:

Yes I have chest pain/pressure. I requested something for anxiety and my pulmonologist told me to loose weight and that will solve the problem. I’m… read more

posted 17 days ago

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work.
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my… read more

A myPHteam Member said:

Hi, what does it take to have your Doctor prescribe Oxygen is the question. It use to be easy to get Oxygen but the Government has recently changed the… read more

posted about 1 month ago

How do I find the middle ground so I don't get so fatigued?

How do I find the middle ground so I don't get so fatigued?

I'm learning that even the slightest stress causes me to get exhausted. Life is full of stress without even trying. I struggle to find that middle ground in handling the stress that normal life hands me and still be able to function. I am able to keep basic cleaning done and grocery shopping with my husband's help. But some 6days that gets to be too much when unexpected stress pops up.

A myPHteam Member said:

Yes ma’am

posted about 2 months ago

SOB

SOB

My kidney doctor said being overweight could cause this Pulmonary Hypertension

A myPHteam Member said:

Thanks for the advice

posted 24 days ago

Thoughts?

Thoughts?

I have a very hard time with meds to the point of my life of quality is more important than quantity of time. Medication is not going good.
I strongly believe in the power of God and believe that He is what has sustained me this far.
I’m open to more natural things.
Everyone has an opinion, this is just mine.
Just sharing my thoughts and not bashing anyone that thinks different.

A myPHteam Member said:

Amen. Moreover, im so glade that we can cast our cares on the Lord. More Prayers more Power amongs each other for each other. Healing is in the… read more

posted 4 months ago

Dizziness possibly vestibular

Dizziness possibly vestibular

Not sure if the dizziness I'm experiencing is just a part of my getting older or something related to the entire lung problem. I've had benign positional vertigo occasionally but only when lying down. I check my oxygen regularly to make sure I"m in compliance but I fear falling. The osteoarthritis in my hands and knees just adds fuel to the entire balance issue. That 'fear' word has crept back into my vocabulary again and I don't want to think something vestibular has been caused by… read more

A myPHteam Member said:

I am newly diagnosed with PH. I fell three times last month! Pulmy suggested a Rollator. What a difference!

posted 8 months ago

Do other people with Pulmonary Hypertension experience feelings of isolation especially during the holidays?

Do other people with Pulmonary Hypertension experience feelings of isolation especially during the holidays?

I've been blessed with some improvements in my health but still find myself fatigued quite often especially at times when I want to be more active. I know the COPD and accompanying PH won't go away. I know they will probably get worse. I'm slower than I was, more SOB than I was, but I'm still trying to function without slowing my family and friends down. It is at those times when I feel "left behing" and… read more

A myPHteam Member said:

I will pray for you. Dear Lord place your hand on dear Christina give her relief and send her friends galore. Amen

posted 7 months ago
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