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Pulmonary Hypertension

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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Anyone Else Get Extremely Short Of Breath And Experience Pain When You Bend Over?

Does Anyone Else Get Extremely Short Of Breath And Experience Pain When You Bend Over?

A myPHteam Member said:

I was formally dx at the Mayo Clinic in Rochester. 2018. 4-5 liters 02 continuous. SOB with/without activity. Chest pain more on then off these days. Post heart cath. we met with transplant surgeon… read more

posted 2 months ago

Does Anyone Else Have Chest Pain With Their PH?

Does Anyone Else Have Chest Pain With Their PH?

I have chest pain, mostly on the left side, and shortness of breath with slight movement. Sometimes it goes away in a few minutes but it usually stays several hours. Sometimes I wake up with it. Does anyone else experience this? If so, how do you manage it?

A myPHteam Member said:

I have chest pain as well. Not daily but 50% of the time. Mine is right in the center of my chest. When I have it I am extremely tired......like right now. The rest of my day will be spent on the… read more

posted 12 days ago

What Happens When We Push Ourself To Do Work ? I Get So Out Of Breath And Takes A While To Get Better. Is This Part Of PH ?

What Happens When We Push Ourself To Do Work ? I Get So Out Of Breath And Takes A While To Get Better. Is This Part Of PH ?

A myPHteam Member said:

It takes a couple of days for me.with emphysema and being overweight also and back problems plus the other stuff that I have wrong with me. I get so frustrated I am use to doing things for myself.

posted 3 months ago

Vaccine

Vaccine

Anyone here get the vaccine? I know all people react differently but how did it go? Did your pulmonologist highly recommend it?

A myPHteam Member said:

Still no vax for me. No boosters, nothing. I have a strong immune system. My vitamin D level is 60. I follow the Dr. Zelenko Protocol and use zinc to KILL any viruses and Quercetin to open my cell… read more

posted 4 months ago

Portable Oxygen And Going Out.

Portable Oxygen And Going Out.

I am confused on how you know what to take with you when you leave home. And how much oxygen to take with you. I have small tanks that have 2 hours in them and I bought a portable oxygen concentrator but I only get one hour with the battery. If I don't have anywhere to plug it in. And it has a smell to it when running. I am new to having oxygen 24/7.

A myPHteam Member said:

Hey Deborah; I pray your week has been a good one. Wanted to let you know I was thinking about you 🌷

posted 2 days ago

I'm On 2 Litters Of Oxygen. My Pulse/oximeter Is Always 98/88

I'm On 2 Litters Of Oxygen. My Pulse/oximeter Is Always 98/88

My oxygen is always 98/90 but my chest is still tight. No inhalers are helping

A myPHteam Member said:

Maybe you need a change of inhalers. Sometimes medication or inhalers stop being effective. You may need a decongestive to clean out your chest. Ask your doctor. I've had that happen to me with… read more

posted 8 months ago

What To Take For Sleep

What To Take For Sleep

I don't sleep at night. Up all night until morning. Can anybody tell me do they have a problem sleeping. Can't take any fever reliever pm medication for night time sleep. I have COPD and on oxygen, symbicort inhaler and albuterol inhaler. My immune system won't let me take much.

A myPHteam Member said:

Hi...thanks for reminding me of my pain patches to use for my leg and foot.....stopped using them because they would not stay on.....but I could place them under my elastic stocking.....had them for… read more

posted 4 months ago
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