Pulmonary Hypertension

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Does anyone else have chest pain with their PH?

Does anyone else have chest pain with their PH?

I have chest pain, mostly on the left side, and shortness of breath with slight movement. Sometimes it goes away in a few minutes but it usually stays several hours. Sometimes I wake up with it. Does anyone else experience this? If so, how do you manage it?

A myPHteam Member said:

I have chest pain when my oxygen levels are low. Usually I pop my 02 back on and it goes away!

posted 11 days ago

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work.
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my… read more

A myPHteam Member said:

What's the difference between this and lupus

posted 23 days ago

I was diagnosed with PH in November 2018 my doctor said it is not bad enough to treat

I was diagnosed with PH in November 2018 my doctor said it is not bad enough to treat

I was diagnosed with pulmonary hypertension November 2018 in the ER. This was a new diagnosis as stated on my ER papers. My pulmonary doctor said he know about it. When I last saw him in April he said he was going to do another CT in a year and go from there that is to check some nodules that I have. He said oh your PH isn't that enough to treat I am on oxygen 24/7 2L at rest 3L when active. Everything I read says the earlier… read more

A myPHteam Member said:

Lisa, I struggle with how to eat right. I'm mostly a vegetarian, but at my age my appetite is a problem. Just not hungry much and then don't feel like… read more

posted 16 days ago

Dizziness possibly vestibular

Dizziness possibly vestibular

Not sure if the dizziness I'm experiencing is just a part of my getting older or something related to the entire lung problem. I've had benign positional vertigo occasionally but only when lying down. I check my oxygen regularly to make sure I"m in compliance but I fear falling. The osteoarthritis in my hands and knees just adds fuel to the entire balance issue. That 'fear' word has crept back into my vocabulary again and I don't want to think something vestibular has been caused by… read more

A myPHteam Member said:

I am newly diagnosed with PH. I fell three times last month! Pulmy suggested a Rollator. What a difference!

posted 2 months ago

Do other people with Pulmonary Hypertension experience feelings of isolation especially during the holidays?

Do other people with Pulmonary Hypertension experience feelings of isolation especially during the holidays?

I've been blessed with some improvements in my health but still find myself fatigued quite often especially at times when I want to be more active. I know the COPD and accompanying PH won't go away. I know they will probably get worse. I'm slower than I was, more SOB than I was, but I'm still trying to function without slowing my family and friends down. It is at those times when I feel "left behing" and… read more

A myPHteam Member said:

I will pray for you. Dear Lord place your hand on dear Christina give her relief and send her friends galore. Amen

posted about 2 months ago

SOB

SOB

My kidney doctor said being overweight could cause this Pulmonary Hypertension

A myPHteam Member said:

Bahhahahaha

posted about 2 months ago

How do I find the middle ground so I don't get so fatigued?

How do I find the middle ground so I don't get so fatigued?

I'm learning that even the slightest stress causes me to get exhausted. Life is full of stress without even trying. I struggle to find that middle ground in handling the stress that normal life hands me and still be able to function. I am able to keep basic cleaning done and grocery shopping with my husband's help. But some 6days that gets to be too much when unexpected stress pops up.

A myPHteam Member said:

When I feel that fatigue hit me. Then I know that I have rest. So I read, nap and watch a good movie. Take care of yourself!

posted 19 days ago

Heart-lung transplant

Heart-lung transplant

I am on 10 liters of oxygen...is anyone on that amount.

A myPHteam Member said:

No Im on 6 sometimes 7. I am on the transplant list for and lung transplant but still trying to decide if its worth it. I am on veletri 24/7 which is a… read more

posted 11 months ago
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