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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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How Do You Stay Active?

How Do You Stay Active?

posted July 28, 2022
Last of 209 replies sign up to view previous answers
A myPHteam Member

Ray Etta
Good for you, that is exactly the type of program I need to be in. I’ve always been active and exercised, jogging and then walking for 3 or 4 miles a day.❤️🎄❤️🎄❤️ As my health… read more

posted December 16, 2022

Does Anyone Else Get Extremely Short Of Breath And Experience Pain When You Bend Over?

Does Anyone Else Get Extremely Short Of Breath And Experience Pain When You Bend Over?

posted December 26, 2017
Last of 202 replies sign up to view previous answers
A myPHteam Member

I'm on ambrisentin and for the last 2 years it was free. But it was a trip meds to see if I can help others. Now they want a thousand dollars for it monthly. Can't afford that amount but the good… read more

posted 7 days ago

What Is The Biggest Piece Of Advice You'd Give To Someone Newly Diagnosed With PH?

What Is The Biggest Piece Of Advice You'd Give To Someone Newly Diagnosed With PH?

posted September 28, 2022
Last of 161 replies sign up to view previous answers
A myPHteam Member

Im hoping each of you understand. This disease could and does effect everyone different. Do your own research. Ask allot of question. Ask your doctor for print outs to explain what your experiencing… read more

posted 18 hours ago

What Advice Do You Have For Others About Managing Fatigue?

What Advice Do You Have For Others About Managing Fatigue?

posted April 27, 2022
Last of 153 replies sign up to view previous answers
A myPHteam Member

stop and rest until you feel better,than try again ,good luck

posted December 1, 2022

Which Supplements Or Vitamins Do You Take?

Which Supplements Or Vitamins Do You Take?

posted February 23, 2022
Last of 116 replies sign up to view previous answers
A myPHteam Member

How about minerals? Does anyone take them? Which ones?

posted August 21, 2022

How Do You Manage The More Challenging Days Of Living With PH?

How Do You Manage The More Challenging Days Of Living With PH?

posted October 26, 2022
Last of 105 replies sign up to view previous answers
A myPHteam Member

I loved the Monet exhibit! Saw it 20 years ago! God Bless You

posted 16 hours ago

What Are Your Top Tips For Managing PH In The Summer Heat?

What Are Your Top Tips For Managing PH In The Summer Heat?

posted June 29, 2022
Last of 101 replies sign up to view previous answers
A myPHteam Member

hang in there Judy6 this is a good site

posted November 1, 2022

Does Anyone Else Have Chest Pain With Their PH?

Does Anyone Else Have Chest Pain With Their PH?

I have chest pain, mostly on the left side, and shortness of breath with slight movement. Sometimes it goes away in a few minutes but it usually stays several hours. Sometimes I wake up with it. Does anyone else experience this? If so, how do you manage it?

posted November 28, 2017
A myPHteam Member

I thought my chest pain was GERD so I just went along with it until my legs were both swollen and that led me to PAH diagnosis...

posted November 27, 2022

What Happens When We Push Ourself To Do Work ? I Get So Out Of Breath And Takes A While To Get Better. Is This Part Of PH ?

What Happens When We Push Ourself To Do Work ? I Get So Out Of Breath And Takes A While To Get Better. Is This Part Of PH ?

posted October 23, 2021
A myPHteam Member

Same! Tomorrow will be what I call recovery day. I've been busy for 2.5 days now and it us definitely catching up with me. The shortness of breath of the last 2 days was at times scary. But I'm just… read more

posted 4 days ago

What's The Most Important Thing You Learned About Living With PH This Past Year?

What's The Most Important Thing You Learned About Living With PH This Past Year?

posted December 28, 2022
A myPHteam Member

Me tooo. I don’t sweat the small stuff. You can always do it tomorrow. I love doing things for others, my pets, my sweet husband, Life is too short to spend it stressed and miserable. This… read more

posted 1 day ago
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