Connect with others who understand.

sign up log in
About myPHteam

Pulmonary Hypertension

Questions + Answers

Don't see your question? ask question
Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

Does Anyone Else Have Chest Pain With Their PH?

Does Anyone Else Have Chest Pain With Their PH?

I have chest pain, mostly on the left side, and shortness of breath with slight movement. Sometimes it goes away in a few minutes but it usually stays several hours. Sometimes I wake up with it. Does anyone else experience this? If so, how do you manage it?

A myPHteam Member said:

Mine is on the right side and goes to the back lay down I am fine but get up I start hurting again

posted 3 months ago

My Pulmomologist Said I Have PH And Has Not Given Me Anything To Help With Symptoms.

My Pulmomologist Said I Have PH And Has Not Given Me Anything To Help With Symptoms.

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work.
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my… read more

A myPHteam Member said:

You need to come to dr Cruz or dr hicks in columbia sc ,they are the best

posted about 2 months ago

How Do I Find The Middle Ground So I Don't Get So Fatigued?

How Do I Find The Middle Ground So I Don't Get So Fatigued?

I'm learning that even the slightest stress causes me to get exhausted. Life is full of stress without even trying. I struggle to find that middle ground in handling the stress that normal life hands me and still be able to function. I am able to keep basic cleaning done and grocery shopping with my husband's help. But some 6days that gets to be too much when unexpected stress pops up.

A myPHteam Member said:

Yes ma’am

posted 10 months ago

SOB

SOB

My kidney doctor said being overweight could cause this Pulmonary Hypertension

A myPHteam Member said:

Thanks for the advice

posted 9 months ago

Exercise

Exercise

what if O2 saturation drops below 90? Stop? Keep exercising anyway? Reduce intensity?

A myPHteam Member said:

i guess it is . but knowing how to work it is important

posted 4 months ago

Thoughts?

Thoughts?

I have a very hard time with meds to the point of my life of quality is more important than quantity of time. Medication is not going good.
I strongly believe in the power of God and believe that He is what has sustained me this far.
I’m open to more natural things.
Everyone has an opinion, this is just mine.
Just sharing my thoughts and not bashing anyone that thinks different.

A myPHteam Member said:

Amen. Moreover, im so glade that we can cast our cares on the Lord. More Prayers more Power amongs each other for each other. Healing is in the… read more

posted about 1 year ago

Dizziness Possibly Vestibular

Dizziness Possibly Vestibular

Not sure if the dizziness I'm experiencing is just a part of my getting older or something related to the entire lung problem. I've had benign positional vertigo occasionally but only when lying down. I check my oxygen regularly to make sure I"m in compliance but I fear falling. The osteoarthritis in my hands and knees just adds fuel to the entire balance issue. That 'fear' word has crept back into my vocabulary again and I don't want to think something vestibular has been caused by… read more

A myPHteam Member said:

I am newly diagnosed with PH. I fell three times last month! Pulmy suggested a Rollator. What a difference!

posted over 1 year ago

Where Do I Begin?? I Am New

Where Do I Begin?? I Am New

Can someone take me under there wing and help me learn how to use this. Newly diagnosed and scared and fragile!

A myPHteam Member said:

Grandmas I. Welcome to my team. We are all here for you so jump in and talk to us, we are all willing and needing someone to talk to. Stay well and keep… read more

posted 3 months ago
Continue with Facebook
Sign up with your email
Already a Member? Log in