Pulmonary Hypertension

Questions + Answers

Don't see your question? ask question
View:
7 medium

Does anyone else get extremely short of breath and experience pain when you bend over?

Does anyone else get extremely short of breath and experience pain when you bend over?

1 mini
A myPHteam Member said:

I get short of breath when bending over but also get cramp like feelings which takes my breath till it stops. I use only 2lt O2 24/7 and a bi-pap when… read more

posted 12 days ago
0 medium

Does anyone else have chest pain with their PH?

Does anyone else have chest pain with their PH?

I have chest pain, mostly on the left side, and shortness of breath with slight movement. Sometimes it goes away in a few minutes but it usually stays several hours. Sometimes I wake up with it. Does anyone else experience this? If so, how do you manage it?

2 mini
A myPHteam Member said:

Yes i get sob but i dial down my activity

posted 3 months ago
6 medium

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

My Pulmomologist said I have PH and has not given me anything to help with symptoms.

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work.
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my… read more

4 mini
A myPHteam Member said:

Oh Marty this is such great NEWS!! Finally you will get some help You will probably have a lot of tests, 6 min walk PFT, (Pulmonary Function Test)… read more

posted 12 days ago
0 medium

Dizziness possibly vestibular

Dizziness possibly vestibular

Not sure if the dizziness I'm experiencing is just a part of my getting older or something related to the entire lung problem. I've had benign positional vertigo occasionally but only when lying down. I check my oxygen regularly to make sure I"m in compliance but I fear falling. The osteoarthritis in my hands and knees just adds fuel to the entire balance issue. That 'fear' word has crept back into my vocabulary again and I don't want to think something vestibular has been caused by… read more

2 mini
A myPHteam Member said:

I am newly diagnosed with PH. I fell three times last month! Pulmy suggested a Rollator. What a difference!

posted 15 days ago
0 medium

Do other people with Pulmonary Hypertension experience feelings of isolation especially during the holidays?

Do other people with Pulmonary Hypertension experience feelings of isolation especially during the holidays?

I've been blessed with some improvements in my health but still find myself fatigued quite often especially at times when I want to be more active. I know the COPD and accompanying PH won't go away. I know they will probably get worse. I'm slower than I was, more SOB than I was, but I'm still trying to function without slowing my family and friends down. It is at those times when I feel "left behing" and… read more

3 mini
A myPHteam Member said:

I live alone. Family lives far away. I have days without talking or seeing anyone. Very lonely. I try to stay busy but that's not easy when you don't… read more

posted 1 day ago
7 medium

What lifestyle changes have you made since becoming diagnosed?

What lifestyle changes have you made since becoming diagnosed?

3 mini
A myPHteam Member said:

I retired shortly after my diagnosis and was lucky enough to get a couple of RVing years in before the 24/7 oxygen requirement became to big a hurdle.… read more

posted 3 months ago
9 medium

Heart-lung transplant

Heart-lung transplant

I am on 10 liters of oxygen...is anyone on that amount.

3 mini
A myPHteam Member said:

No Im on 6 sometimes 7. I am on the transplant list for and lung transplant but still trying to decide if its worth it. I am on veletri 24/7 which is a… read more

posted 9 months ago
8 medium

What are some of the moments you find your PH bothers you the most.

What are some of the moments you find your PH bothers you the most.

Taking a shower cause me to get SOB often.

3 mini
A myPHteam Member said:

Oh my I know the feeling. Showering is the worst and tAkes forever. I feel so wiped out when done. I have a stool but it's still a process . At least I… read more

posted 8 days ago
0 medium

SOB

SOB

My kidney doctor said being overweight could cause this Pulmonary Hypertension

0 mini
A myPHteam Member said:

ChristinaBiancoHowell, SOB stands for Shortness of Breath. Hope that helps. Take care

posted about 14 hours ago
7 medium

How do I find the middle ground so I don't get so fatigued?

How do I find the middle ground so I don't get so fatigued?

I'm learning that even the slightest stress causes me to get exhausted. Life is full of stress without even trying. I struggle to find that middle ground in handling the stress that normal life hands me and still be able to function. I am able to keep basic cleaning done and grocery shopping with my husband's help. But some 6days that gets to be too much when unexpected stress pops up.

4 mini
A myPHteam Member said:

I'm just seeing this post. Earlier today I was lying on the couch and said "I don't know why I'm so exhausted" my mom replied, "Kelly, it's Friday.… read more

posted 25 days ago
Continue with Facebook
Sign up with your email
Already a Member? Log in