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Pulmonary Hypertension

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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Anyone Else Have Chest Pain With Their PH?

Does Anyone Else Have Chest Pain With Their PH?

I have chest pain, mostly on the left side, and shortness of breath with slight movement. Sometimes it goes away in a few minutes but it usually stays several hours. Sometimes I wake up with it. Does anyone else experience this? If so, how do you manage it?

A myPHteam Member said:

I had chest pain from the sternum outward to the ribs when I was in my late 20's. If came about after I had continuously lifted my laundry to the clothesline and mopped the floors in our mobile home… read more

posted about 1 month ago

My Pulmomologist Said I Have PH And Has Not Given Me Anything To Help With Symptoms.

My Pulmomologist Said I Have PH And Has Not Given Me Anything To Help With Symptoms.

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my shoes or pick anything of any weight up I feel like I am going to… read more

A myPHteam Member said:

You need to come to dr Cruz or dr hicks in columbia sc ,they are the best

posted 9 months ago

How Many People With Pah Have Insomnia And Sleep Apnea

How Many People With Pah Have Insomnia And Sleep Apnea

I am just curious how many people with the disease have these problems , the insomnia is killing me i never sleep

A myPHteam Member said:

i have sleep apnea and i can never sleep more than 4 hours at a time.

posted 3 months ago

How Do I Find The Middle Ground So I Don't Get So Fatigued?

How Do I Find The Middle Ground So I Don't Get So Fatigued?

I'm learning that even the slightest stress causes me to get exhausted. Life is full of stress without even trying. I struggle to find that middle ground in handling the stress that normal life hands me and still be able to function. I am able to keep basic cleaning done and grocery shopping with my husband's help. But some 6days that gets to be too much when unexpected stress pops up.

A myPHteam Member said:

JANE, SO PROUD OF YOU!!! Each time you do this it will get easier on you to do this. I have found that most stores are now setting times for us older folks to do our shopping. I also have found that… read more

posted 7 months ago

I Have A Question, Does PH Every Get Better, Or Does It Stay The Same, Or Get Worse As You Grow Older?

I Have A Question, Does PH Every Get Better, Or Does It Stay The Same, Or Get Worse As You Grow Older?

A myPHteam Member said:

Hi Btrandi, That question varies with each patient. The degrees of PHA or PA is from 0 -100%. It affects each person differently, especially if they were athletic or a couch cushion. Various… read more

posted about 1 month ago

SOB

SOB

My kidney doctor said being overweight could cause this Pulmonary Hypertension

A myPHteam Member said:

Thanks for the advice

posted over 1 year ago

Thoughts?

Thoughts?

I have a very hard time with meds to the point of my life of quality is more important than quantity of time. Medication is not going good.
I strongly believe in the power of God and believe that He is what has sustained me this far.
I’m open to more natural things.
Everyone has an opinion, this is just mine.
Just sharing my thoughts and not bashing anyone that thinks different.

A myPHteam Member said:

Yes!!

posted about 1 month ago

Exercise

Exercise

what if O2 saturation drops below 90? Stop? Keep exercising anyway? Reduce intensity?

A myPHteam Member said:

i guess it is . but knowing how to work it is important

posted 12 months ago
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