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Pulmonary Hypertension

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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Anyone Else Have Chest Pain With Their PH?

Does Anyone Else Have Chest Pain With Their PH?

I have chest pain, mostly on the left side, and shortness of breath with slight movement. Sometimes it goes away in a few minutes but it usually stays several hours. Sometimes I wake up with it. Does anyone else experience this? If so, how do you manage it?

A myPHteam Member said:

I had chest pain from the sternum outward to the ribs when I was in my late 20's. If came about after I had continuously lifted my laundry to the clothesline and mopped the floors in our mobile home… read more

posted 5 months ago

I'm On 2 Litters Of Oxygen. My Pulse/oximeter Is Always 98/88

I'm On 2 Litters Of Oxygen. My Pulse/oximeter Is Always 98/88

My oxygen is always 98/90 but my chest is still tight. No inhalers are helping

A myPHteam Member said:

Maybe you need a change of inhalers. Sometimes medication or inhalers stop being effective. You may need a decongestive to clean out your chest. Ask your doctor. I've had that happen to me with… read more

posted 13 days ago

My Pulmomologist Said I Have PH And Has Not Given Me Anything To Help With Symptoms.

My Pulmomologist Said I Have PH And Has Not Given Me Anything To Help With Symptoms.

I feel very fatigued, Dizzy and short of breath most/All days. Especially after trying to do something for an hour or so the day before. I have been like this for 2.5-3 years. My pulmonologist is not treating me for it just making me do more tests with cardiologist. I live in Oklahoma and the Humidity is making it worse. I can't work
It starts when I wake up (I am on CPAP) and gets worse when I shower. If I bend over to tie my shoes or pick anything of any weight up I feel like I am going to… read more

A myPHteam Member said:

Hi. I was diagnosed with ph in February 2021 and I have been on oxygen every since. The doctors performed several tests including the stress test, heart cath, and blood gas which measured the amount… read more

posted about 1 month ago

What To Take For Sleep

What To Take For Sleep

I don't sleep at night. Up all night until morning. Can anybody tell me do they have a problem sleeping. Can't take any fever reliever pm medication for night time sleep. I have COPD and on oxygen, symbicort inhaler and albuterol inhaler. My immune system won't let me take much.

A myPHteam Member said:

I have to elevate my feet due to swelling in my legs

posted about 2 months ago

Struggle With Finding Things On This Sight

Struggle With Finding Things On This Sight

I'm sorry this isnt a health question, but do most of you use a computer or your phone to navigate on this sight. I use my phone and I wonder if it would be easier to use my iPad or my laptop????????? Thanks!
Den

A myPHteam Member said:

I use my phone for every single time

posted about 17 hours ago

Has Anyone Have A PPO Insurance Coverage?

Has Anyone Have A PPO Insurance Coverage?

A myPHteam Member said:

JudyHand goodnight. Thanks for the hug. Most appreciated. Prayers and hugs.

posted 27 days ago

Exercise

Exercise

what if O2 saturation drops below 90? Stop? Keep exercising anyway? Reduce intensity?

A myPHteam Member said:

Always follow your Dr. Advice. Everybody has a difference in other conditions not just PH that can affect our bodies.

posted about 1 month ago

How Many People With Pah Have Insomnia And Sleep Apnea

How Many People With Pah Have Insomnia And Sleep Apnea

I am just curious how many people with the disease have these problems , the insomnia is killing me i never sleep

A myPHteam Member said:

I also have PHT and sleep apnea. I am on a trilogy machine and still do not sleep well. I average 4 to 5 hours a day. I am not allowed to take medicaton to sleep.

posted 3 months ago
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