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A myPHteam Member asked a question 💭
Worcester, MA
September 22
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A myPHteam Member

Wow. I never heard of Platypnea-orthodeoxia syndrome (POS).

My SOB and oxygen levels get a lot worse when I lie down. So I am on both nighttime O2 assist and I sleep on an adjustable bed so my upper quadrant is raised close to 45 degrees. Sometimes I sit for a while on the edge of my bed just to breathe better and then lie down again.

It must be such a challenge for you to deal with these conflicting syndromes.

September 22
A myPHteam Member

It's amazing the patients that God gives me I appreciate it so much hour at a time sometimes

September 23
myPHteam

Platypnea-orthodeoxia syndrome (POS) is a rare condition where breathing becomes more difficult when sitting or standing upright, and improves when lying down — which is actually the opposite of what most people with pulmonary hypertension (PH) experience.

When POS occurs alongside PH, it can make symptoms more complex and Show Full Answer

Platypnea-orthodeoxia syndrome (POS) is a rare condition where breathing becomes more difficult when sitting or standing upright, and improves when lying down — which is actually the opposite of what most people with pulmonary hypertension (PH) experience.

When POS occurs alongside PH, it can make symptoms more complex and harder to manage. The combination can cause:

- Significant shortness of breath when upright
- Low blood oxygen levels (hypoxemia)
- Dizziness or lightheadedness
- Fatigue
- Cyanosis (bluish or grayish skin discoloration due to low oxygen)

These overlapping symptoms can make it tricky to pinpoint what's causing discomfort at any given moment. Because POS with PH is complex, it's really important to work closely with a specialist — ideally a pulmonologist or cardiologist experienced in PH — to get the right diagnostic tests and a tailored treatment plan.

Tests like an echocardiogram, CT scan, or right-heart catheterization may help evaluate what's driving symptoms. Don't hesitate to flag any new or worsening symptoms to your care team right away.

September 22

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