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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
February 18
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A myPHteam Member

In 2019 i tried for disability for having Scleroderma. At this time I hadn't been diagnosed with having PAH. It was 5 months later I received my disability. Then in 2022 i was diagnosed having severe PAH. I hope it goes quick for you that you receive your disability!

February 19
A myPHteam Member

Just got approved this week. I was very detail on my work duties since I work in a psychiatric hospital as tech. Make sure to tell them if you are oxygen and if you have difficulty carrying things without getting out breath. Don't give up.

February 19
myPHteam

Has anyone else struggled with getting disability benefits after a pulmonary hypertension diagnosis?

Getting approved for disability benefits can be a challenging and lengthy process, and you're not alone in facing these difficulties. Many people with pulmonary hypertension experience similar frustrations when applying.

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Has anyone else struggled with getting disability benefits after a pulmonary hypertension diagnosis?

Getting approved for disability benefits can be a challenging and lengthy process, and you're not alone in facing these difficulties. Many people with pulmonary hypertension experience similar frustrations when applying.

To qualify for disability benefits with pulmonary hypertension, you need to demonstrate that you've been unable to work for at least 12 months because of your condition. The application process requires thorough documentation of your condition, including medical records, test results, and statements from your healthcare providers.

Here are some steps that may help strengthen your application:

- Gather comprehensive medical documentation showing the severity of your PH and how it limits your daily activities
- Get detailed statements from your pulmonary hypertension specialist about your functional limitations
- Document all treatments you've tried and their effectiveness
- Keep records of how your condition prevents you from performing work-related tasks
- Consider working with a disability attorney or advocate who specializes in these cases, as they can help navigate the appeals process if you've been denied

Many people need to appeal their initial denial, sometimes multiple times, before being approved. Don't give up - persistence is often key in these situations.

Have you been working with anyone to help with your application, or have you received any specific reasons for denials that you're trying to address?

February 18

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