Powered By
I am looking for others living with PAH who may also be dealing with extreme sinus issues. My husband has PAH and he has seen allergy specialists, ENTs and a specialist respiratory physiotherapist but nothing has improved his sinus condition. I am wondering if it could be a sign that his condition is deteriorating. Thank you.
Although many of the PAH medications can cause sinus congestion, this is an expected side effect. These symptoms can be reduced with nasal irrigation and saline sprays. Low humidity (from heat) can also cause sinus congestion. You might consider trying humidifiers in the rooms your husband spends most of his time. Just be certain to clean the humidifiers regularly.
So sorry you didn’t like my tone. I was simply trying to offer information and assistance.
Thanks Heather. My husband has had the condition for 10 years. We work with the top PAH specialist in our country. We have asked before about the sinus issues and were told it was not the medication. As stated previously, he has been to several other specialists and tried everything to try to fix the symptoms (as stated in my original post). Whilst I appreciate your information, I felt quite offended by the tone of your response. We're doing the best we can with the information we had been provided.
As a side note...Before switching to Adempas, I had been on Tadalafil (which is also known to clog sinuses) and the side effect I got was a horrid 24/7 debilitating cough. My specialist insisted that the cough wasn't related to Tadalafil and wanted me to go through all kinds of testing. Separately both she and I called the manufacturer and learned that yes, a bad cough was reported in 0.01% of the people taking the medicine. The cough went away in less than 48 hours after stopping the medicine.
The moral of that story is that you need to listen to YOUR body. Not every side effect gets printed in the materials and it is possible for your body to have its own unique response to medications.
I tell all my doctors that I tend to always fall in the 0.01% of people in terms of side effects, and luckily they listen to me.
Stuffy Nose is like the 2nd side effect mentioned on WebMD for Opsumit
https://www.webmd.com/drugs/opsumit-macitentan
Continue with Facebook
Continue with Email
Join
Your Privacy Choices
