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A myPHteam Member asked a question 💭
Pittsburgh, PA
December 27, 2025
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Answer Summary

Members shared their experiences living with pulmonary hypertension from left-sided heart failure, with timelines ranging from recent... Read more

Members shared their experiences living with pulmonary hypertension from left-sided heart failure, with timelines ranging from recent diagnoses to several years of management. Several members explained that PH is measured by functional classes rather than stages, describing symptoms from mild activity limitations to breathlessness at rest, and sharing practical strategies including CardioMEMs implants for pressure monitoring, dietary changes like eliminating caffeine and limiting fluids, medications for GERD and heart failure, and sleeping on an incline. A recurring theme was maintaining hope through small victories in pressure readings, celebrating medical progress, and supporting each other with prayers and encouragement through anxiety and upcoming procedures like ablations.

A myPHteam Member

Bill: PH isn’t measured in “stages” like other progressive illnesses. It is measured in functional classes. I am considered to be PH Group 2, Class 3. When I am at my computer I will try to find the class breakdowns for you. But my PH is considered to be MILD even though I am functional class 3 ( out of 4). I do not yet need O2 24/7. My edema is well in control. I have not yet had a heart attack though I am in and out of Afib and Tachycardia

I am hoping when Winrevair gets approved for Group 2 it will reverse my symptoms even more and buy me even more time.

December 27, 2025
A myPHteam Member

Heather, I've had the ablation before my PAH diagnosis. It's understandable to be scared. Mine went well. Prayers for your anxiety and the procedure. Happy Sunday!

December 28, 2025
A myPHteam Member

@A myPHteam Member. Will be praying for you! 🙏

December 28, 2025
A myPHteam Member

In general, no. I’ve already survived what was a “terminal cancer” diagnosis 37 years ago. I have more of a warrior mentality.

On the other hand, I will be learning in a couple of weeks if I need to have an ablation. That is scaring the sh*t out of me.

December 28, 2025
A myPHteam Member

Do you get alot of anxiety

December 27, 2025

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