Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Opsumit: If you're on it, please let me know how long, your experiences, and any side effects. My doc wants to put me on it and I am tryin

A myPHteam Member asked a question in Living with PH WHO Group 1 PAH group 💭
Tama, IA
August 26, 2025
 · 
Reactions

Answer Summary

Members responded to a question about Opsumit with mostly positive experiences, with many reporting little to no side effects after years of... Read more

Members responded to a question about Opsumit with mostly positive experiences, with many reporting little to no side effects after years of use. Several members shared that they take Opsumit alongside other medications like Adempas, Uptravi, and Tadalafil, and that the combination has helped slow PAH progression and improve symptoms. A recurring theme was encouragement and hope, with members wishing each other well on their treatment journeys.

A myPHteam Member

Hi iam on opsumit. Been on it 10yrs no side affect. Very Good.

November 28, 2025
A myPHteam Member

I’ve been on Opsomit for a year now. I’ve only experienced nasal congestion, low anemia, tiredness. Good luck on this journey.

October 29, 2025
A myPHteam Member

Hi Angela. I started Opsumit three years ago and I didn't have any side effects from it. I was also put on Adempas and my PAH symptoms improved. Best wishes

August 26, 2025
A myPHteam Member

Helli Angela, I have been on opsumit since 2022. It seems like it is helping I am alsi on sildenafil and uptravi, furosemide and potassium. I have not had any side effects from opsumit. I hope it goes well for you! God bless 🙌🙏

August 26, 2025
A myPHteam Member

I have been on it for 3 years and my doctor credits it with keeping the progression of my PAH very slow. Zero side effects

April 25

Related Questions

View All

What were your oxygen levels when you were put on oxygen?

A myPHteam Member asked a question 💭
Canton, GA
January 6, 2023

Side effects on Tadalafil:

A myPHteam Member asked a question 💭
Manalapan, NJ
December 27, 2022

Adempas

A myPHteam Member asked a question 💭
November 1, 2022

Pulmonary Hypertension Treatments and Their Side Effects
I choose to move on...
Try as you might to slow me down