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Does Tyvaso help with shortness of breath?

April 16, 2025
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Answer Summary

Members shared mixed but mostly encouraging experiences with Tyvaso for pulmonary arterial hypertension, with many reporting meaningful... Read more

Members shared mixed but mostly encouraging experiences with Tyvaso for pulmonary arterial hypertension, with many reporting meaningful improvements in their ability to walk through stores, complete daily tasks, and manage shortness of breath, though nearly all emphasized that the medication helps but does not completely eliminate breathlessness. Several members described practical challenges including a learning curve with the inhaler (which sometimes causes coughing), the need to take doses even when tired, and side effects like headaches, while others noted that combining Tyvaso with Opsumit or other medications like Adempas and Winrevair led to better results than either drug alone. A recurring theme was the highly individual nature of treatment response, with some members experiencing dramatic relief while others saw little improvement, underscoring the importance of patience, open communication with medical teams, and sometimes seeking second opinions to find the right combination of therapies.

A myPHteam Member

Hi Elaine. Have your dr suggested it yet? When I was first on it it was something that was kinda like an inhaler had to use distilled water and changed it up. Was a Big hassle. Now it’s so much easier. Don’t get me wrong I still get out of breath. Don’t bend over or have to walk upstairs with bags😱. I have chairlift and it have truly been a blessing. Sometimes when I shower I get out of breath and don’t be running late. I remember getting up 30mins before I was to leave home for work. Now it’s 1.5 hours for me not to rush and take all this medicine but not to work anymore. All of my dr or at UAB they have a clinic for PH that works with heart dr and rheumatology and lungs. I’ll be praying for you.

April 19, 2025
A myPHteam Member

My HR did not drop on Opsumit, however, when I first started on it I ended up in the hospital for fluid overload. They stopped it for about 2 weeks and then restarted it. I have not had any issues with it since then

June 4, 2025
A myPHteam Member

Janette, I did not have a drop in heart rate when I first started Opsumit. I did have a slight drop in B/P but overall a consistent B/P over time.The positive effect was that it really reduced swelling of feet and ankles.

May 31, 2025
A myPHteam Member

I started on Opsumit and Tadalafil. RHC said no improvement. They added Uptravi, but stopped it due to side effects. Had another RHC last month. No improvement. The bright side, my numbers havent gotten worse. 😄We are trying to get Winrivir approved. I've heard there have been some promising results.

May 30, 2025
A myPHteam Member

I’m finding out about trying different medications. I hope I’m not expecting too much from Tyvaso. I will take it along with the Opsumit.

May 16, 2025

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