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I'm 65 Trying To Retire & Go On Medicare. The Problem Is They Will Not Cover My 3 Major Meds. Winrevaire,Tyvaso, And Opsumit .Any Ideas?

A myPHteam Member asked a question đź’­
Matawan, NJ

Has anyone dealt with this yet?

December 31, 2024
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Answer Summary

Members rallied around someone worried about losing coverage for their three essential pulmonary arterial hypertension medications when... Read more

Members rallied around someone worried about losing coverage for their three essential pulmonary arterial hypertension medications when transitioning to Medicare, reassuring them that traditional Medicare Part D plans typically approve PAH medications with a $2000 annual maximum out-of-pocket cap starting in 2025. Several members shared practical strategies including applying for copay assistance through foundations like The Assistance Fund, PAN Foundation, and Healthwell, working with Medicare advisors to compare formularies across different Part D providers, and connecting with their PH specialist's office for help navigating grants and clinical trial opportunities. A recurring theme was the importance of avoiding Medicare Advantage plans that may exclude PAH drugs entirely, understanding that grant money counts toward the $2000 cap, and being prepared to appeal denials while recognizing that the annual process can feel overwhelming but is ultimately manageable with the right support.

A myPHteam Member

I just cannot in my wildest dreams imagine how you all have to go through this every year. That in itself would, I would think, add stress to an already stressful illness. It also sounds complicated with all the different Part A, Part Bs, etc. and Insurance companies. My heart goes out to all of you. 🙏

January 4, 2025
A myPHteam Member

Traditional Medicare D plans will usually approve the PH medications but that doesn’t mean they pay the entire amount. You always have a co-pay, which by itself can be very expensive. It generally is not too difficult to get some kind of grant to help. PH Clinics are set up to assist in the grant procurement and the application process is really not that bad.

There is a greater issue if you have a Medicare Advantage plan (Medicare C) as a few of those are dropping PH meds from their formularies altogether. But even then you may be able to get help directly from the manufacturer of the drug.

And remember, this year your maximum exposure would be $2000 for APPROVED medications if you are on a D plan.

January 3, 2025
A myPHteam Member

It is certainly not a perfect system, especially on the medication side of our healthcare system. But everything is a trade off.

January 4, 2025
A myPHteam Member

You are so welcome. We have to stay on top of everything, don't we!

January 4, 2025
A myPHteam Member

@A myPHteam Member Medicare Part D (drug coverage) is administered through various insurance companies. Consequently, formularies vary from insurance company to insurance company. This is why you must look carefully at the drug formulary annually during open enrollment. As for procuring copay or assistance with these medications, the process does vary by source but is fairly straightforward and simple. For example, I receive copay assistance through The Assistance Fund. I was able to enroll by phone and it took less than 5 minutes. I was approved within minutes of applying.

January 3, 2025

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