Answer Summary

Members rallied around someone experiencing severe swelling, pain, and redness in their leg after starting a subcutaneous Remodulin site, with... Read more

Members rallied around someone experiencing severe swelling, pain, and redness in their leg after starting a subcutaneous Remodulin site, with many urging them to seek immediate medical attention to rule out a blood clot or infection. Several members shared their own difficult experiences with infusion sites, including allergic reactions to dressings, persistent pain, and the constant vigilance required with short half-life medications, while emphasizing the importance of staying in close contact with doctors and not hesitating to go to the ER when symptoms worsen. A recurring theme was the balance between pushing through treatment side effects and listening to your body, with the community celebrating together when the member finally got relief and much-needed sleep after a brutal weekend.