Me too. I felt so much better on O2. When I moved, I had to change my Medicare plan and when I went to the Dr, here I didn't desaturate enough to get a new prescription for O2. Now I stay between 84-87%. I see my new PCP again tomorrow and I'm going to demand a new script for O2. I tell you though I'm so tired of feeling bad and fighting for what I need to continue living. But I will continue to fight cuz I'm just a bitch like that lol. I will keep you in my prayers. When were you diagnosed?

I was initially on 2 ltr of 0/2. Now on 6 ltr. I have yet to pass a 6 minute walk test. I am a mouth breather and considering using a different mask with my 0/2.

I have been on Tyvaso since 8/2023. I take 12 puffs 4x per day. I am also on 6ltr of 0/2 24x7. I feel really good most days. I also take Sidentifil, Anoro Elipta and Ofev. I am somewhat restricted by the o/2 but can still move around. Hope it gets to working for you.

I'm on the nebulizer up to 10 breaths since October...I haven't felt any improvement....the side effects of coughing, fatigue and asthmatic feeling for an hour after I inhale are getting to me. I'm switching to the dry powder inhaler next week.

I have been on Tyvaso for about two years now. Are you on the nebulizer from or the dry powder inhaler? I don't know if I can tell any difference in my condition or not. Do you have specific questions?