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A myPHteam Member asked a question 💭

I saw my pulmonologist on yesterday. I was prescribed jardiance. I really have distoluc heart failure. Unbelievable! Can someone help me understand what more I can do? I did well on my 6 minute walk, lungs and
Heart sounded good. The results was due to my TTE test about 3 weeks ago.

June 7, 2023 (edited)
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Answer Summary

Members shared their experiences with diastolic heart failure and stiff heart, with many describing similar journeys of progressive symptoms... Read more

Members shared their experiences with diastolic heart failure and stiff heart, with many describing similar journeys of progressive symptoms like shortness of breath, fatigue, and difficulty keeping up with daily activities despite being on multiple medications. Several members offered practical guidance, including monitoring daily weight closely, limiting sodium to 1,500-2,000 mg per day, avoiding processed foods, staying hydrated, exercising within limits, and advocating for medication adjustments when symptoms worsen. A recurring theme was the fear and emotional toll of watching the disease progress unpredictably, balanced by gratitude for medications like Opsumit, Jardiance, and Uptravi that have helped many members maintain quality of life.

A myPHteam Member

I know this is a frightening diagnosis. In addition to medications, there is much you can do to manage heart failure. Daily weights are more important than ever. Talk with your doctor about the weight parameters you need to remain within. Rapid weight gain indicates that you are retaining fluid and your heart is pumping less efficiently. You need to be diligent about eating a healthy low salt/sodium diet. Unless instructed otherwise, you should not consume more than 2000 mg of salt/sodium per day. That's one teaspoon! Focus on a diet of lean proteins such as chicken and fish, lots of fresh veggies, and fresh fruits. Stay away from processed foods such as frozen meals, sandwich meat, canned goods, etc. Become a label reader. Look for the word "sodium" on labels. Avoid pickled foods. Unless instructed otherwise, drink plenty of water to expel sodium from your system. Exercise daily. Heart failure is not curable or reversable, but you must take control of your health and manage your heart failure aggressively.

https://my.clevelandclinic.org/health/diseases/...

June 8, 2023
A myPHteam Member

Hey bj10. Stiff heart is when the muscle thickens from high BP. It's a warning sign of congestive heart failure.

June 7, 2023
A myPHteam Member

I have no answers but will be praying for you.

June 7, 2023
A myPHteam Member

Pretty much same story here. Wow

February 18, 2024
A myPHteam Member

I have had multiple cardiacs due to afib. After my third ablation surgery, I started having heart failure they told me it was due to diastolic heart failure they explained that One side of my heart muscle was too thick. And not pliable so heart could not squeeze properly ? 2 years later. After treating me for another round of CHF they discovered via echo in the hospital that I had severe pulmonary hypertension. ??

February 16, 2024

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