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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myPHteam Member asked a question 💭
Cincinnati, OH

Anyone out there do subcutaneous remodulin? Where do you have your site? How often do you have to move it? Are you getting assistance financially ( I hope!)?

June 5, 2023
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A myPHteam Member

I am six months in with Remodulin subcutaneous. I wrote you a book then it would not post more than 3,000 characters!!! In short, I have found my right upper arm works best though it limits my sleeping positions to avoid occlusion alarms. The left side of my body is horrible no matter where it put it. My sites last anywhere from 7 days to six weeks. Site lifting can be minimized by covering the site with a wrap or arm band at night during sleeping and when bathing to keep steam from getting to the IV3000. I have my husband steady the site when it is time to change the cassette to minimize twisting which I feel lifts the site quicker. Starting a dry site 24 hours before introducing medication also helps. I trim the edges of the site when they start to lift and cut an IV3000 into strips to tack down the new edges.
You might try TAF or a co-pay card for financial assistance. I have found TAF the most useful but it is limited to specific PAH drug assistance.

October 14, 2023
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