Who has had the PTE surgery? They crack you chest open, stop your heart and dig the blood clots out. Designed for CTEPH patoents.
I am scheduled for this surgery in a month at the University of California San Diego where the surgery was invented. They are down to only 1% mortality rate during surgery, but one is in ICU for 3 days and then regular hospital for 10 day. Can't drive a car for a month. Frankly, it scares the living hell out of me. The surgery I had hoped for was the Balloon Angioplasty which can't remove the clots but basically pushing them to the side so you can breath better. I have also recent start Ade… read more
Judy ,I haven't had it but I pray for you if you go through it that you do very well and make a complete recovery.
Anyone here diagnosed with pulmonary hypertension due to scarring from blood clots? The short name for it is CTEPH. It’s WHO Group number 4
Has anyone had blood clots in their heart and lungs ? What meds are you on?