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I'm Venting Here And Not Looking For Sympathy.

A myPHteam Member asked a question 💭
Denver, CO

So yeah I get it I have this terminal disease and its progressive and I end up suffocating.

I have had major anxiety problems my entire life and I don't know what to do with the time left.

December 1, 2022
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Answer Summary

Members connected deeply over a conversation about facing terminal illness with profound anxiety, sharing the terrifying reality of... Read more

Members connected deeply over a conversation about facing terminal illness with profound anxiety, sharing the terrifying reality of progressive disease alongside practical and emotional guidance for navigating end-of-life decisions. Several members offered compassionate advice, including taking things one day at a time, completing advance directives and DNR forms, researching healthcare proxies, building support systems outside of biological family, and seeking palliative or hospice care when ready. A recurring theme was the importance of self-advocacy in medical settings, finding meaning in each day despite physical limitations, and creating chosen families and communities that can provide support when traditional networks fall short.

A myPHteam Member

Marty, I never wanted to live that long. I don’t think I can afford it. 😂

January 5, 2023
A myPHteam Member

Thanks for your suggestions. I keep busy doing things I love (reading, movies and theater on streaming services).

Sadly I can't discuss the following with friends or family because they are in denial:

I've seen first hand how mean everyone can get after someone passed so I have spend a great deal of time and money to making sure my estate is in order and hired a medical advocate to insure my wishes are followed. I know I'm a glass half empty kind of guy but I've seen first hand how senior affairs are mishandled and are abused during end of life decisions.

Thanks for letting me vent...tom

February 25, 2023
A myPHteam Member

I have gone back to school, online. It helps fill the days.

February 23, 2023
A myPHteam Member

Funny, no one really even touched base on what you said. I get you, your not lying. Makes you look at things from a whole new perspective.

February 8, 2023
A myPHteam Member

Thanks for the hugs. I try to take life one day at a time. Otherwise it could be overwhelming. 😀

January 7, 2023

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