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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Feel Very Much In The Dark. I Need Home Nurse. I Can't Find Out Do I Get Help Or What Is Going On In I Am Ignored!

A myPHteam Member asked a question 💭
Brownwood, TX

I hate this i have a scary feeling í have not been calling to lose my nurse andsocial worker. Im declined. I get up and wow i am not sure but i am not the same. Im laying in bed all weekend. i asked for help. I get help until i have to be the phase of active dying i cant be normal. i can not bathe get anything done. I had a nurse leave in the hopes of a way of who to call. Dr is up to date . I cant breathe im in bed on 02. I have advance directive but basically not detailed i lost the social… read more

November 21, 2022
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A myPHteam Member

Find out what you are being denied for. If it is insurance, call them. If they won't listen tell them that you want to speak to their supervisor. Insurance is such a racket and have far too much control You have to advocate for yourself!

November 22, 2022
A myPHteam Member

I am saying a prayer for u the Healthcare where I live is about the same I have to go to the next state over for the doctors to hear what is going on

December 13, 2022
A myPHteam Member

Do you have a Pulmonary doctor and a Primary Care doctor? Maybe they could double team the insurance company.

November 23, 2022
A myPHteam Member

Your insurance has a lot to do with whether you get home health. I have Humana and they don't authorize it. I won't have them in 2023 .
My church also helps me with visitors to comfort me. At least I am not alone.
Sometimes, I have to change my outlook which helps me see things differently. You can too!

November 22, 2022
A myPHteam Member

Tinajean,
It's been nearly a year and you obviously have had some help. I would like to know what is it you expect? You didn't get this disease overnight and you won't be back to your old self overnight either.
Some of your life changes have been positive or you wouldn't be where you are now. I have had PAH since 2018 and I have seen changes in medication. Using oxygen has even helped. Getting exercise so far has been great. A little at a time. I keep a positive attitude and don't let myself be depressed.
Did you get an advocate?

March 24, 2023

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