I Feel Very Much In The Dark. I Need Home Nurse. I Can't Find Out Do I Get Help Or What Is Going On In I Am Ignored!
I hate this i have a scary feeling í have not been calling to lose my nurse andsocial worker. Im declined. I get up and wow i am not sure but i am not the same. Im laying in bed all weekend. i asked for help. I get help until i have to be the phase of active dying i cant be normal. i can not bathe get anything done. I had a nurse leave in the hopes of a way of who to call. Dr is up to date . I cant breathe im in bed on 02. I have advance directive but basically not detailed i lost the social… read more
Find out what you are being denied for. If it is insurance, call them. If they won't listen tell them that you want to speak to their supervisor. Insurance is such a racket and have far too much control You have to advocate for yourself!
I am saying a prayer for u the Healthcare where I live is about the same I have to go to the next state over for the doctors to hear what is going on
Do you have a Pulmonary doctor and a Primary Care doctor? Maybe they could double team the insurance company.
Your insurance has a lot to do with whether you get home health. I have Humana and they don't authorize it. I won't have them in 2023 .
My church also helps me with visitors to comfort me. At least I am not alone.
Sometimes, I have to change my outlook which helps me see things differently. You can too!
Tinajean,
It's been nearly a year and you obviously have had some help. I would like to know what is it you expect? You didn't get this disease overnight and you won't be back to your old self overnight either.
Some of your life changes have been positive or you wouldn't be where you are now. I have had PAH since 2018 and I have seen changes in medication. Using oxygen has even helped. Getting exercise so far has been great. A little at a time. I keep a positive attitude and don't let myself be depressed.
Did you get an advocate?
Does Anyone Else Get Extremely Short Of Breath And Experience Pain When You Bend Over?
How Many Of You Are Considering Palliative Care?
Does Anyone Have A Spouse Who Really Does Not Understand How Serious A Condition PAH Is?
Sign up for free!