I look everything up that my doctors tell me so I can better understand what they say. This way I better understand when they have me taking different tests.

Find a cardiologist & a pulmonologist who are reputable. The only reason I can figure out is evidently he really either doesn't understand the disease process and doesn't know how to treat it. Get your records & move on if he doesn't respect you enough to try then dismiss him. Find a new doctor a cardiologist can determine & treat PH/PAH Good Luck you will find one that will treat you the way you deserve. Keep on keeping on. You can do this😊

I know my Medicare pcp diagnosed me, but told me nothing except the sildenafil would help me feel less tired.
My V A pcp hade me get an echocardiogram which led to the real diagnosis of ph. I was in the hospital after the echocardiogram because my heat rate was 30. That’s when they found the Pulmonary embolism. So I went home with abixapan and sildenafil. I didn’t start looking at google in til I thought things were getting worse. That’s when I started to raise Cain. 😂 we need to be our own advocate.

Oh, wow, my picture turned out good. I don't normally take good pics. Well my brother came home today. Maybe I can go home on on Mon or Tuesday. My prays continue for my PH friends and PAH community😊🙏💕

DorothyDavis
Willie
About Pallative Care:
I do not think we need it for the long haul I think it is good at the beginning of the Diognosis
It is an additional source of information and resources and it is free.
They can answer all your questions and concerns and it is covered by Medicare and it has nothing to do with end of life