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Feeling Discouraged

Feeling Discouraged

Hi everyone
I was looking over MyChart (my medical records, test results, etc.) when I came across one of the ER doctor's notes from when I was in the ER a while back, and the doctor said I have pulmonary hypertension. When I saw my primary doctor, I told her of my recent discovery and me finding out that I have PH. She didn't seem too concerned & kinda brushed it off, so I didn't say anything more about it. A few months went by (without me being concerned about it. After all, my doctor… read more

A myPHteam Member said:

If I were you, I would find a pulmonologist who specializes in pulmonary hypertension. The golden test for PH is a right heart catherization. Find a great cardiologist. If they do not satisfy you with this, find another Dr. Do not settle for less than the best!
Hugs
PatSmith

posted 28 days ago
A myPHteam Member said:

Seems to me that your doctors aren't paying attention to you like they should be. My doctors are awesome. They're all keeping an eye on all my illnesses.

posted 20 days ago
A myPHteam Member said:

Hi 🌻 My docs don't seem to be in a hurry either AND they have differing opinions on my diagnosis. Only the ER staff seemed concerned. In the meantime, I can't breath when I walk and I now have a cannula as a piece of jewelry. I looked up PH specialists in my area and have recently joined The University of Michigan Medical Center. That facility has PH specialists that are WHO certified. I suggest everyone see if there is a Comprehensive PH Center in your area. Best of luck and best of health. πŸŒ»πŸ™πŸ’“

posted 25 days ago
A myPHteam Member said:

U need a ph dr. I too waited so long before being Diagnosed

posted 12 days ago
A myPHteam Member said:

I went through the exact same thing. I think my doctors saw the Hypertension part, but passed right over the Pulmonary part. Hypertension. No big deal, right?

posted 12 days ago
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