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About myPHteam
Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Addition To My Previous Question?

Addition To My Previous Question?

It’s Lori again. I forgot to say I’m 74, have PH, and arthritis. And nerve pain in my legs after knee replacements both legs.

A myPHteam Member said:

Lori hang in there ,a prayer n
ow and then helps

posted about 2 months ago
A myPHteam Member said:

yes hoping you are having a good day

posted 2 months ago
A myPHteam Member said:

Hi, Lori. I’m amazed at the fact you could walk a mile!! Good for you, not good because of the pain and exhaustion. It’s a double whammy because of the arthritis and PH.

I’m newly diagnosed but have spent the last 3 weeks researching. Never had to charge my phone so much! It sounds like you are experiencing the typical symptoms of PH. I would keep a journal of your activities, the symptoms they cause, and how long it takes to recover. That’s valuable information for your cardiologist and/or pulmonologist.

Unfortunately, I’m at level IV so my symptoms do not even allow me to stand upright, so I can’t tell you about walking such a long distance. I do know my psoriatic arthritis would for sure not allow me to walk that far. I get exhausted doing a transfer from bed to wheelchair to be toileted. It’s really weird how things can change so quickly!

If you have not already read this, I am sending you a link to the Pulmonary Hypertension Association’s newly diagnosed booklet. If you are a “techy”, this can be downloaded it’s a pdf or you can have one mailed to you. If you have seen it already, please excuse my eagerness to share😀

https://phassociation.org/newly-diagnosed/

I hope you continue to understand your symptoms, Lori. PH is so different from person to person so the treatments are tailored, not set in stone.

Have a good evening.

posted 2 months ago
A myPHteam Member said:

keep praying ,this is what helps me .

posted 2 months ago
A myPHteam Member said:

Have you tried Lyrica for your nerve pain? It is pretty effective for nerve pain.

posted about 1 month ago
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