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How Do You Get A Proper Diagnosis For PH? My Hear Doctor And Pulmonologist Say I Do Not Have It Yet As My Hearts Pressure Is Good.

How Do You Get A Proper Diagnosis For PH? My Hear Doctor And Pulmonologist Say I Do Not Have It Yet As My Hearts Pressure Is Good.

I live in Colorado and started to have oxygen issues in 2015. I have had every kind of test and all the pulmonologist came up with was a possible shunt. I developed a irregular heartbeat a year or so ago and was put on Metoprolol. That works great. An MRI shows a severely dilated pulmonary artery of 3.4mm but my cardiologist says I do not have PH because by heart has good pressure. I have severe sleep apnea and use a CPAP with 3 liters of oxygen and need to use O2 during the day. When I am… read more

A myPHteam Member said:

SheilaAnnCynkar, My friend Aaron Vigil was describing to you the Electrocardiogram aka: Echo. My PH was dx by an Echo. Aaron did have an Echo & then the lung dr. wanted the RHC & that confirmed everything. PatV.

posted 4 months ago
A myPHteam Member said:

Thank you so much for the replies. I will be talking to me doctor.

posted 4 months ago
A myPHteam Member said:

Hi SheilaAnnCynkar, I to come from Colorado and I concur with PatV on the right heart catherization. If not that at least get a well I forget what it is called but it is like a camera thing when they look at babies in the womb. I'm sorry but I have memory problems now. But the test I was ţalking about is how my pulmonologist decided to do the RHC.

posted 4 months ago
A myPHteam Member said:

SheilaAnnCynkar: Sweet Lady, you certainly have had so much on your plate.
Sounds like you have a PCP, Cardiologist, and Pulmonologist. I see that you live in Co. & that could be an "elevation" concern creating part of the need for your o2. You stated that you've been told your heart pressures are o.k. But, your
lung pressures are the determining factor for PH. If you have not had an RHC
( right heart catheterization ) then it would be suggested that you ask one of your dr.s for that. Sometimes it is the cardiologist & sometimes the pulmonologist that perform the RHC. This test will definitely be worth your request. It will unveil much-needed information. Please post again either with a question or information. God has gotten you this far. He will not desert you now.
PatV

posted 4 months ago
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