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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Get A Right Heart Catheterization When They Say There Is No Need For One?

How Do You Get A Right Heart Catheterization When They Say There Is No Need For One?

I definitely need to know what to do in order to make the specialist listen to me, especially for a right heart catheterization?? How long before anyone here was diagnosed?

posted July 26, 2021
A myPHteam Member

Please people realize that PH is not diagnosed well via an Echo. Check with your doctor. My echo
said I had Mild PH but my Cardiologist said I DO NOT have PH. The echo Is NOT a good tool for diagnosing PH.

posted October 1 (edited)
A myPHteam Member

PriscillaHubertButler said:
Change drs. I went to the Mayo Clinic and had 2 pulmonologists say I needed it. My regular heart dr said no need for it, but the Mayo cardiologist agreed with his peers and had it ordered.
______________________________________
Hi Priscilla
after Mayo clinic said you needed a Heart Ccath and after you got the Heart Cath what did it disclose??
What medications did you take after the Heart Cath??
How did your condition improve and are there any new recomendations?
Thanks for your input
Barbara

posted September 2 (edited)
A myPHteam Member

If the pressures are not very high, the docs may not put you on any PH/PAH medicine right away. If the pressures are mid to higher, they will normally prescribe meds, or maybe just oxygen for some or all of the time. Can you have your doc tell what the artery pressures were during your RHC? That will somewhat be a guide about your particular PH. also, ask about which W.H.O. group you are in, and which New York Class heart failure. And then do your research and be ready to ask a bunch of questions. Good luck.

posted August 17
A myPHteam Member

This may be something that all are doing but STAY AWAY FROM SODIUM and become a label reader to stay away from it. If you can afford it get an exercise machine in your home. I have one of the older BowFlex machines. It is a little smaller than that new one and mine does not have fancy attachments. Just the rods. If you cannot do much walking then strength training may help. Hence the BowFlex. Or get some lite freeweights.

posted July 29
A myPHteam Member

What kind of life would it be if you never, ever had a yaki soda again ? Once in a while, I think we all have to get out of the diet, the routine that we are in. What helps me is I never wear sandels, or slippers for a long time around the house. I always wear a supporting shoe that has some heel, and an insole. I also buy the sole as an extra piece. Any sport store that sells sneakers has these supports. Sneakers seem to help my leg pains and less swelling of the feet.

posted September 8, 2021

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