I definitely need to know what to do in order to make the specialist listen to me, especially for a right heart catheterization?? How long before anyone here was diagnosed?
What kind of life would it be if you never, ever had a yaki soda again ? Once in a while, I think we all have to get out of the diet, the routine that we are in. What helps me is I never wear sandels, or slippers for a long time around the house. I always wear a supporting shoe that has some heel, and an insole. I also buy the sole as an extra piece. Any sport store that sells sneakers has these supports. Sneakers seem to help my leg pains and less swelling of the feet.
You are so right. Hospital definitely charge for things that was not even done. If you do not know how to read your bill you will never know. That's why patients should ask for an itemized bill. If the doctor does not use the right codes for the test that are being ordered insurance will not pay. Doctors are given a chance to resubmit the bill with the right codes.
Also learn Yoga breathing. Look up on internet but I also have books on it.\
This may be something that all are doing but STAY AWAY FROM SODIUM and become a label reader to stay away from it. If you can afford it get an exercise machine in your home. I have one of the older BowFlex machines. It is a little smaller than that new one and mine does not have fancy attachments. Just the rods. If you cannot do much walking then strength training may help. Hence the BowFlex. Or get some lite freeweights.
I too, suggest trying to change doctors. What is your specialist a specialist IN? From all the reading I have done about PH/PAH, the heart cath is the gold standard of diagnosis. They say it takes on average two years to diagnosis, and that’s WAY too long. For a chronic, progressive illness, time is so valuable. Be your own best advocate. If you believe you need a right heart cath, get your doc to refer you, or find another doctor who will do it. If it comes back no PH/PAH, then thank God. If you do have it, getting treated soon is critical. Stay strong an PHight for yourself! God bless you.
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