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I Have Severe Pulmonary Arterial Hypertension. Lungs Are Actually In Good

I Have Severe Pulmonary Arterial Hypertension. Lungs Are Actually In Good

My lungs are in good shape but the pulmonary artery going into my heart gas stenosis. Why can't the doctors put a Stent into that area like the ones I have all around my heart?

A myPHteam Member said:

My lungs are not good I have Sarcoidosis and that causes granuloma in the lungs and lymph nodes. And due to all of that I have COPD. All of these thing can cause Pulmonary Hypertension and Diastolic CHF.

posted 6 days ago
A myPHteam Member said:

hi,
i'm also having side effects from my meds,
all i can say is hang in there and hopefully your doctors might find the right combination of medicines and you will be enjoying a better quality of life,
all the best

posted 7 days ago
A myPHteam Member said:

Oh my goodness, I feel like an experiment rat. I have tried so many drugs starting with blood thinners that caused me to bleed in all my organs. The sildenafil caused horrible headaches. Opsumit gave me no side effects. Yeah! Uptravi caused horrible headaches and uncontrollable vomiting. Just started Adempas. Doing okay on it, not great but okay. My journey with heart disease started when I was 44. I am serious about quality of life over quantity of life. Doctors don't want to give up on me but I am tired. Everyone have a great weekend!!!

posted 8 days ago
A myPHteam Member said:

Google endovascular stents. Its doable especially in congenital heart like Tetraology of Fallot but out comes may not be favorable. Don’t know affect of PH

posted 8 days ago
A myPHteam Member said:

Thank you! I have 6 grandchildren and two great granddaughters who are my world. It is so nice to have people I can express my feelings to. Have a wonderful day!

posted 18 days ago
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