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About myPHteam

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About myPHteam
Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have Auto-immune Issue Causing PH?

Does Anyone Have Auto-immune Issue Causing PH?

I recently tested positive for scleroderma associated with my PAH. Does anyone use medication for this?

A myPHteam Member said:

Pulmonary Hypertension is the umbrella under which Pulmonary Arterial Hypertension falls. Pulmonary Arterial Hypertension is a form of Pulmonary Hypertension. It is Group1 in the World Health Organization classifications. I was diagnosed with Pulmonary Arterial Hypertension secondary to Limited Systemic Sclerosis (Scleroderma) in 2012. I take Hydroxychloroquine and Prednisone for my Scleroderma and Ambrisentan, Sildenafil, and Furosemide for PAH. I also take a few non-prescription supplements on the advice of my PAH team which includes my Rheumatologist, Cardiologist and Pulmonologist.

edited, originally posted over 1 year ago
A myPHteam Member said:

Jeanette. Thank you for your informative post, interesting and helpful. My name is Gwen, just wanted to wish you a blessed and happy day 💕. I have PH and COPD....Happy to have you in our group of wonderful people 💕. Love❤️Gwen

posted over 1 year ago
A myPHteam Member said:

Scleroderma can cause ph and pah. They go hand in hand. Some ppl get it, others do not

edited, originally posted over 1 year ago
A myPHteam Member said:

Mine is caused by chronic blood clots with a history of bilateral pulmonary emboli and anemia in 2012 and thrombocytopenia with splenectomy in 2015. I also had a DVT in January 2021 with Covid infection. I am in the Group 4 diagnosis category. My thrombocytopenia was an auto-immuno disease caused by my spleen "eating up all my platelets". I was airlifted to Seattle for treatment and spent a month on the Oncology/Hematology Ward at Virginia Mason Medical Center. My platelet count is now 282,000 which is very good and safe! I am on Adempas to treat my condition and prevent chronic blood clots.

posted 5 months ago
A myPHteam Member said:

Hyperthryoidism

posted 5 months ago
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