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What Kind Of Chest Pain Do You Have With Your Ph And How Severe Is It? Also How Often Does It Happen?

A myPHteam Member asked a question 💭
Jetson, KY
November 28, 2020
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Answer Summary

Members shared widely varied experiences with chest pain related to pulmonary hypertension, with descriptions ranging from dull, achy... Read more

Members shared widely varied experiences with chest pain related to pulmonary hypertension, with descriptions ranging from dull, achy sensations and tightness in the lungs to severe squeezing feelings across the chest and sharp, radiating pain into the back and shoulders. Several members found relief through medications like nitroglycerin and isosorbide, while many described triggers such as bending, lifting, wearing bras, or simply standing too long, with the squeezing sensation being a particularly common and validating discovery among the group. A recurring theme was the challenge of distinguishing PH-related chest pain from other conditions like heart disease or gallbladder issues, along with the relief of finally hearing others describe the same symptoms and realizing they were not alone or imagining their experiences.

A myPHteam Member

Joining this group I finally got to hear from others that they have the squeezing to. It made me feel so validated that it was happening. Then to see others cant stand for very long. Omg I wasnt crazy.

May 5, 2023
A myPHteam Member

I can’t stand for long. I get light headed or just don’t feel right. Hard to explain. Short of breath also.

January 15, 2024
A myPHteam Member

I haven't had chest pain that I have related to PAH. My heart problems cause some chest pain under my left breast. They feel like slow cramps. I've noticed that I am getting light headed more and more. About chest pains: how do you know what to attribute it to? PH or heart? Just from experience or has it been diagnosed as part of your PH or heart or gall bladder, or just plain old gas in some instances? My only other symptoms so far are naps. I have to take an afternoon nap or I cannot function anymore for the day. I never ever liked naps but now they are essential. Best to all.

July 25, 2023
A myPHteam Member

It was dx 12/2015. No treatment Dr didn’t think it was an issue. “Yet” !?! I had a severe cough. I awoke with major chest pain. Tearing, sharp, radiating pain. I lay in bed thinking “if it is a heart attack. It would be very painful.” Then another wave of pain hit. It was very painful.*(early Saturday morning) My boyfriend took me to urgent care. *my choice. They demanded I go to hospital ER. I didn’t want to make to much out of it. I had seen other people sent home with gas. Turns out, it wasn’t gas. After much testing and many appts. It was PAH. Group 1&2. I ended up with a lung biopsy. The chest pain began as once in awhile. Over a few years has become more present then not. In my case the pain is both muscle and cartilage. Pain is both left & right side, going into my back, shoulder blade. *polycondritis, pleurisy, rheumatoid arthritis, mixed connective tissue disease. Asthma, biopsy positive for emphysema & PAH.
*NEVER SMOKED
. . . .

March 9, 2022
A myPHteam Member

My cardiogenic CP is substernal and occasionally radiates to the left arm and scapula area. My PH pain is several times a day and feels like an "ouch" feeling in my R clavicular area.

January 16, 2022

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