My diagnosis of PH was made because of the high pressure noted during a heart cath. So far the tests have all been normal except the RF and ANA.
While waiting (3 months!) For a rheumatology appointment, I thought maybe some one on this forum may have a similar auto-immune condition.
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Welcome to my team. Jag was correct when she posted to your page. We are all different but have the same illness
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I wrote to you on your page. There are many here that do have auto immune diseases. Everybody who has PH is different. Some may have one autoimmune while someone else has a different autoimmune disease while some dont have. So, as you read about PH, its important to realise that this rare disease comes from different sources and different levels, thus not everyone will have the same medicines or problems. True we do have much in common...shortness of breath and fatigue are 2 most common and most times, there is someone in our group suffering the same symptom you have. So please keep posting here. We support each other and try to help keep us lifted. Glad you found us. Hugs!
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