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How Long Has Everyone Been Diagnosed?

How Long Has Everyone Been Diagnosed?

I am newly diagnosed, and as I read up on PH, 1 article stated a life expectancy of 3 years!

A myPHteam Member said:

I read that too, scared me half to death. But speaking with my provider I got better news. Take care and be well.

posted 2 months ago
A myPHteam Member said:

JenniferHolotankoRineer, I just added you to my team of very supportive people that are more than willing to help in anyway that we can. Please do not believe everything you read. On this team, we have people that are newly diagnosed and don't know which direction to go because doctors don't explain a whole lot to you in the beginning. Then there are a bunch of us, myself included, that have had PH and/or PAH for 10+ years, we have been thru a lot with this crummy disease. Low energy and being tired all the time, unfortunately, are a side effect of the disease and is normal. This disease will completely change your life. Don't be afraid to ask all the questions you would like, one of us will have an answer for you.

posted 3 months ago
A myPHteam Member said:

Josephsr, you're right, no one can accurately determine death but God himself when he calls you home. That's why everyone calls a doctor's office 'a doctor's practice' because that's what it is 'a practice'!

posted 2 months ago
A myPHteam Member said:

(This was not supposed to be a book. I hope it will encourage)
Life Expectancy::
Always - MAYBE/PERHAPS....
Length of life is unpredictable!
So many unknowns.. Parents have been told the baby will not live beyond 3 months... Rest of the story -- Baby daughter is now a beautiful 26 year old young lady..
July 2004 Heart attack while visiting DC.. Quadruple Bypass....
Family at home in PA.. Told may NOT survive surgery..
Here I am - 16 years out and have NOT experienced any difficulties..
February (Phone number can only be seen by the question and answer creators). Emergency surgery - ruptured blood artery in stomach - removed more than 2 liters blood.. Survival: most died during surgery,, some lived for 6 months,, very few survived 1 year... Me, heading for 4 year anniversary 2021..
Diagnosed: PH 5 years ago.. I ignore 3 year life expectancy
PD 2 years ago... again I will ignore 10 year expectancy from diagnoses......
As for me... no one REALLY "predicted" my birth...
No one has predicted/estimated my departure either...
SO I heartily agree with those 10 plus years posted above..
Life Time End on our journey? UNKNOWN!!
"LIVE every moment, enjoy!"
I was asked a question some time ago by a family member.. "Dad, when will you die?" Me, "when I stop breathing!"
"One day at a time, Lord, that's all that I ask!"
BUT until then my heart shall go on singing.
But until then with JOY I'll carry on.
Until the day my eyes shall behold Him.
Until the day He calls me home..
God bless you all & God bless America..

posted 2 months ago
A myPHteam Member said:

PAH 2018 CHF 2019

posted 10 days ago
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