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About myPHteam
Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Long Has Everyone Been Diagnosed?

How Long Has Everyone Been Diagnosed?

I am newly diagnosed, and as I read up on PH, 1 article stated a life expectancy of 3 years!

posted March 13, 2020
A myPHteam Member

I don't know what your name is, but please do not believe everything you read! I've already added you to my team. On this team you will find people that are just going thru being diagnosed to those of us that have had PH and/or PAH for over 10 years. Even those with stage IV PH and/or PAH can live well over ten years. Personally, I think whomever puts those articles out that say those that are being diagnosed with PH and/or PAH are just trying to scare the hell out of people! Try to relax and enjoy the day.

posted June 14, 2020
A myPHteam Member

JenniferHolotankoRineer, I just added you to my team of very supportive people that are more than willing to help in anyway that we can. Please do not believe everything you read. On this team, we have people that are newly diagnosed and don't know which direction to go because doctors don't explain a whole lot to you in the beginning. Then there are a bunch of us, myself included, that have had PH and/or PAH for 10+ years, we have been thru a lot with this crummy disease. Low energy and being tired all the time, unfortunately, are a side effect of the disease and is normal. This disease will completely change your life. Don't be afraid to ask all the questions you would like, one of us will have an answer for you.

posted March 13, 2020
A myPHteam Member

I was diagnosed 4 mos. ago after a 3 week stay in the hospital. I’m trying to adjust to NOT doing everything myself but I find asking for help to be difficult.
I am really happy to find this group. Take care, be safe and keep faithful

posted June 13, 2020
A myPHteam Member

I read that too, scared me half to death. But speaking with my provider I got better news. Take care and be well.

posted March 28, 2020
A myPHteam Member

I agree take of yourself eat right , no bad habits. Walk learn to do breathing exercises. Stay strong!

posted September 20, 2020

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