I will take you under my wings. It is scary. I have had it 9 plus years. I am on oxygen 24/7 and three inhalers
Have to stay out of the cold or wear a mask over mouth and nose. Summer heat and humidity really gets me down
Legs hurt when I walk so I ride my power wheelchair. Just about have to change my whole life. Being g scared is normal along with anxiety a and depression. If you need us, we are here for you. Where are you from? I am in south Ga. Have a good day.

Well said!

Sometimes when one has to see multiple physicians communication between them can break Down. One of your doctors should be “captain of the ship” responsible for coordinating tests, results and your care. Don’t be afraid to speak up. For yourself or have someone who can make sure you are moving all the
‘Road” ok. Good luck.

It looks like you are moving forward a bit by.seeing your primary doctor. He will be able to set you up with any new doctors you need. Give up on the doctor who is stonewalling you. Let your PC direct things for awhile. You have enough on your plate without having to deal with that other so-called doctor. I'm glad you went to your PC instead of just waiting to see what will happen. That says you're a smart lady and you have what it takes to fight this disease. And that is huge! Read as much as you can and ask a lot of questions. The more you learn and the earlier you do it will make a big difference. I unfortunately learned this the hard way by just coasting along and burying my head in the sand with the result I lost unnecessary ground I will never get back. Fight. Rest. Fight some more. I believe in you.