Connect with others who understand.

Sign up Log in
Resources
About myPHteam
Powered By
Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Where Do I Begin?? I Am New

A myPHteam Member asked a question 💭
Salt Lake City, UT

Can someone take me under there wing and help me learn how to use this. Newly diagnosed and scared and fragile!

September 24, 2019
View reactions
A myPHteam Member

Always put a mask over mouth and nose in winter air. Buy at Walmart.

November 18, 2019
A myPHteam Member

I will take you under my wings. It is scary. I have had it 9 plus years. I am on oxygen 24/7 and three inhalers
Have to stay out of the cold or wear a mask over mouth and nose. Summer heat and humidity really gets me down
Legs hurt when I walk so I ride my power wheelchair. Just about have to change my whole life. Being g scared is normal along with anxiety a and depression. If you need us, we are here for you. Where are you from? I am in south Ga. Have a good day.

November 17, 2019
A myPHteam Member

Well said!

October 17, 2019
A myPHteam Member

Sometimes when one has to see multiple physicians communication between them can break Down. One of your doctors should be “captain of the ship” responsible for coordinating tests, results and your care. Don’t be afraid to speak up. For yourself or have someone who can make sure you are moving all the
‘Road” ok. Good luck.

October 17, 2019
A myPHteam Member

It looks like you are moving forward a bit by.seeing your primary doctor. He will be able to set you up with any new doctors you need. Give up on the doctor who is stonewalling you. Let your PC direct things for awhile. You have enough on your plate without having to deal with that other so-called doctor. I'm glad you went to your PC instead of just waiting to see what will happen. That says you're a smart lady and you have what it takes to fight this disease. And that is huge! Read as much as you can and ask a lot of questions. The more you learn and the earlier you do it will make a big difference. I unfortunately learned this the hard way by just coasting along and burying my head in the sand with the result I lost unnecessary ground I will never get back. Fight. Rest. Fight some more. I believe in you.

October 16, 2019

Related content

View All

I Need To File For Disability But I Don't Know Where To Begin, Can Someone Point Me In The Right Direction?

A myPHteam Member asked a question 💭
Fort Worth, TX

O.K. This 1 Goes In The Tutorial. I Am Confused. (whats New) I See Where It Comes Up On A Persons Page That Someone Has Given A Hug, Or

A myPHteam Member asked a question 💭
Pueblo, CO

My Cardiologist Told Me To Keep Exercising And Come Back In Several Years. Does It Seem Appropriate?

A myPHteam Member asked a question 💭
Pompano Beach, FL

Already a Member? Log in