Does anyone have CTEPH? If so how long have you had it?

Does anyone have CTEPH? If so how long have you had it?

A myPHteam Member said:

She should not have been rude, and when needed..you should get on your high horse, just be careful getting off. ;)
Seriously, thank you for giving her "what for".

posted 3 days ago
A myPHteam Member said:

I don't know what happened to the person who I sent this message to but to everyone else, I apologize with my whole heart. If you failed to see her entry she was rude and said ugly things about us and to stop sending her nofications. Sorry I got on my high horse.

posted 4 days ago
A myPHteam Member said:

You are rude. We are sick people searching out for answers to help us get along in this world a little easier. YOU SUBSCRIBED to this page obviously not having a clue what it is. We are happy for you to get off. So get off. Stop whining. You are dismissed!

posted 10 days ago
A myPHteam Member said:

Showers are rough. Since I'm not very active, I don't need to take a shower daily. I limit them to about 1 per week b/c they are so tiring.

posted 12 days ago
A myPHteam Member said:

How do most of the pulmonary hypertension patients who are on oxygen deal with getting a shower? It is difficult for me with the tubing and I get tired. I even have a chair to sit on. Looking for ideas on how to make it easier. thanks

posted 12 days ago
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