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Real members of myPHteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Have A Question, Does PH Every Get Better, Or Does It Stay The Same, Or Get Worse As You Grow Older?

I Have A Question, Does PH Every Get Better, Or Does It Stay The Same, Or Get Worse As You Grow Older?

A myPHteam Member said:

Hi, I have heard people call those kinds of thoughts "Baggage". It keeps you from following your Dreams and moving Forward in Your Life! You accept where you are. I think we ALL go through this stage at one point or another! It is up to you to decide how long you want to stay in this stage of your LIFE! Do you still have other things you want to do? Go see? Eat? Experience? Write a Book? Downsize your house? That is what I am doing right now! My kids need to enjoy the things I want them to have now. Not later. I have a few tapes to make for my Grandkids! Finish those projects you have wanted to do! Stop thinking about your Expiration Date! ONLY MY GOD knows wheñ n where, so keep busy until then! Have some FUN!

posted over 2 years ago
A myPHteam Member said:

Hi Btrandi, That question varies with each patient. The degrees of PHA or PA is from 0 -100%. It affects each person differently, especially if they were athletic or a couch cushion. Various medications are on the market to control the actual cause and I must add here, NOONE KNOWS HOW OR WHAT causes it. I was put on Viagra when first diagnosised. Boy did I have FUN with that! HA! HA! HA! Erectile Dysfunction was NOT what I had! Each time I had to get a months supply they would have a new Pharmacist I had to talk to. HA! HA! HA! They just don't have a sense of Humor sometimes. When I grew to 375lbs and my kidneys stopped, We changed my meds. I got a new batch of Doctors. Ones that knew about PAH n PA. They are the same Doctors I still have today. My Doctors are concerned about ME! When I was so sick I had called their office and found out one was on vacation. Two days later My Doctor called me (still on vacation) and ask me how I was. She had been thinking about me so strongly she called me. The next day I was admitted to the hospital. My Cardiologist came in and told me she had called him. MY POINT IS THIS! There are good Doctors out there. You just have to weed out the bad ones! Read the information about what you are diagnosed with. Ask questions. Learn what the meds you are taking is suppose to do. When was the last time YOU ask your Doctor How they are doing? I do every time I see them because I want them as Healthy as they can be! The answer you are looking for totally depends on how the Patient reacts to the diagnosis. Do they give up or decide to make the best of every day. I have seen both ways. I prefer staying topside for now. There are some things I still haven't done and that's for another day! Prayers for our Family for easier Breathing Days.

posted 12 months ago
A myPHteam Member said:

I haven't written in a while, I go to 3 specialists and a primary care dr. as someone said you need to find one that will listen to you and take the time to explain what is going on. I have RA and that includes a lot of issues lupus, osteoarthritis, osteoporosis, Sjogren and fibromyalgia. I have COPD and in February of 2017 I had an RSV virous which affected my heart and yes we take a lot of medication. I make sure all the dr's talk to each other and are on the same page with what is prescribed for me. I have fractures in my back from the osteoporosis and I have lost 4 inches in height. I don't know if it is ok to post the medications I take or not somewhere I read it was not. I have been told that if the pain in my back gets too bad I can get something like a filler put in the fractures. I had a cist removed from the bone in my ring finger and the dr. did that, so I know what they are talking about. The Rheumatologist takes care of this and gives me a shot of Proleo twice a year. The Pulmonologist takes care of my lungs and Cardiologist takes care of my heart and the primary care Dr. has to help keep it all together. She is the one I value above all the others I really depend on her.

posted almost 3 years ago
A myPHteam Member said:

PAH once diagnosised is a Progressive Pulmonary Disease That can be slowed down with diet, exercise, medications, Oxygen Therapy and other ways and Means your Cardiologist and Pulmonologist determines your body can benefit by. It usually divides into 4 stages. as you progress. .

posted almost 3 years ago
A myPHteam Member said:

It is a degenerative progressive disease that can be slowed with meds and exercise, diet to lose weight, and a healthier lifestyle. Each case is different and must be handled by a Pulmonologist, Cardiologist, Internal Medicine Doctor and if you have other problems like Diabetes, Renal problems or others, you need specialist in those fields also. I know sounds like a lot but after the initial diagnosis you only see these Doctors every six months or when there is a problem. My Doctors text each other when I see one and they need an answer from the other. I feel comfortable with my group because I know They care about ME! They are not in a hurry to get me out the door. We have been a group for awhile.If you don't like your Doctor FIND ANOTHER ONE! ASK questions! This is your life we are talking about here.

posted almost 3 years ago
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