It is a degenerative progressive disease that can be slowed with meds and exercise, diet to lose weight, and a healthier lifestyle. Each case is different and must be handled by a Pulmonologist, Cardiologist, Internal Medicine Doctor and if you have other problems like Diabetes, Renal problems or others, you need specialist in those fields also. I know sounds like a lot but after the initial diagnosis you only see these Doctors every six months or when there is a problem. My Doctors text each other when I see one and they need an answer from the other. I feel comfortable with my group because I know They care about ME! They are not in a hurry to get me out the door. We have been a group for awhile.If you don't like your Doctor FIND ANOTHER ONE! ASK questions! This is your life we are talking about here.
Brandi, GOOD FOR YOU! If the Doctor isn't working with you.... Get another one who will! There are plenty of them who do want patients who want to live a healthier life!
Thanks, everyone, I am hearing and learning things that my Pulmonary Dr. has never discussed with me. I got tired of not getting anything from him I just quit going to him. Been about 6 yrs. I guess I need to find myself a new one.
My goodness, I am learning all kinds of goodies today and I was diagnosed in 2002. There is a cure? Yahoo! To bad they haven't shared that news with ALL of US! So far I have always been told it is a progressive disease that slowly enlarges the left side of your heart because of the increase pumping pressure it has to put forth to push the blood towards the lungs and through back into the heart to be cycled into the body. The meds we all take lower the pressures so it is easier for the heart to do this function. Your Tricuspid valve to your heart will always be larger because that is your return blood flow back from your body and slows down before it enters the heart. Now basically what I just said was, " you have high blood pressure in the arteries of your lungs". Your Doctor prescribes medications to decrease what is causing that high blood pressure. That is why we all are taking all kinds of different meds and are able to do different things because we are all on different levels of this disease process. Somethings work well for some of us and not for all of us. I will tell you this though, move around as much as you can. Challenge yourself daily in what you can and can not do so you will stay flexible. Walk and stay limber.. Stay on your diet, NO SALT. Eat healthy. This is the type of diagnosis that doesn't go away. You are in for the long haul, so get use to it and plan your day, so you can enjoy your life.
I haven't written in a while, I go to 3 specialists and a primary care dr. as someone said you need to find one that will listen to you and take the time to explain what is going on. I have RA and that includes a lot of issues lupus, osteoarthritis, osteoporosis, Sjogren and fibromyalgia. I have COPD and in February of 2017 I had an RSV virous which affected my heart and yes we take a lot of medication. I make sure all the dr's talk to each other and are on the same page with what is prescribed for me. I have fractures in my back from the osteoporosis and I have lost 4 inches in height. I don't know if it is ok to post the medications I take or not somewhere I read it was not. I have been told that if the pain in my back gets too bad I can get something like a filler put in the fractures. I had a cist removed from the bone in my ring finger and the dr. did that, so I know what they are talking about. The Rheumatologist takes care of this and gives me a shot of Proleo twice a year. The Pulmonologist takes care of my lungs and Cardiologist takes care of my heart and the primary care Dr. has to help keep it all together. She is the one I value above all the others I really depend on her.