I live alone. Family lives far away. I have days without talking or seeing anyone. Very lonely. I try to stay busy but that's not easy when you don't feel good and are on a strict budget.

I think we all feel this way.....I am at the point where I feel like I am in prison and no one cares about me. No one calls or visits...… It's almost like I have died and the world just moved on without me. I know my family loves me but they have so much to deal with themselves. I want to be involved in things with friends and family, but no longer can. I sometimes go for days without seeing another face or hearing another voice. Just part of life I guess...……. Just stay involved as much as you can and keep your head up.....

I think the rehab is probably what helped me the most. When the cardio/pulmonary rehab ended I started therapy for my spinal stenosis and arthritis. There I've been working with a Physical therapist who though he wasn't directly treating the PH did understand my lack of exercise tolerance and worked patiently to help me become more mobile with less breathlessness. His care has been incredible and I only wish my other practitioners had the same. I agree completely that in my case I've hopefully slowed down the disease progression at least for a while. Learning to be patient with myself is something I must work on. Peace and better breathing with much happiness for the holidays.

I have the same thing Cathy! I don’t look sick & try to keep up but I’m struggling many days. I was an avid walker & hiker most of my life but not now. We are going on vaca with good friends & im sure I will feel left out when they go for brisk am walks. I told my husband he should go too but I know I’ll feel a little down

I will pray for you. Dear Lord place your hand on dear Christina give her relief and send her friends galore. Amen