Natalie Heise The Doctor just took me off oxygen because I did the walk test and never went below 93 but like you I still feel winded and out of breath when I do housework, etc. I have the type of PH that medicine doesn't help and the one question I had was if I go off oxygen is it going to further damage the arteries in my lungs, never got a answer. I just had a new Aortic Valve put into my Mitral Valve by Transcatheter because the pressure in my lungs was to high to do open heart surgery again. Pressure went down to 70 after surgery and after a Echo Gram 2 weeks ago the pressure went down to 50. Normal is 25. I still use oxygen when I sleep until they test me over night with a Oximeter. So I understand how you feel. Not fun having PH. I wish you well and hope you find a answer to your shortness of breath.
My PH team discourages bending of any kind. I try to limit the amount I bend. I have a few claw things to pick up stuff from floor etc. Also told not to push, pull or lift anything over 10-20 pounds. Also when walking not to move arms back and forth. The above actions makes your heart work harder,
Nancy, I was told not to bend over, It squeezes the pulmonary valve. I have a grab it and use a lot. I know sometimes we just have to bend over. I also use my c-pap during the day. I am now waiting for insurance to ok a Bi-pap. I can't do much house work anymore. Cannot change bed linens. I sit in my walker to cook do dishes, and mop my floor, some dusting..
I have a dog... every time I have to bend to pick up 💩 I get SOB. So here is my experience to improve that task.
1. I started yoga. I have to modify most (there’s is NO way I am able to do downward dog😳) of the moves... but the flexibility & core strength I have gained... has given me far more movement without getting SOB. Someone mentioned tying their shoes - I was able to untie both of mine for the first time in 2 yrs last wkend🎉
2. Bending over = I am very cognizant that I bend by squatting (bending at the knees, not from the waist) to pick things up.
3. Weight management = The last helpful thing has been - I HAVE to lose weight. I have never been this heavy (combo of ill, depression & inactivity). I am not happy with myself for letting myself gain all this weight - but now I am here. Obese. So.. i don’t believe in diets - but I DO believe in balanced eating = portion size, increased protein & smaller meals across the day.
4. Mental health = I am no longer depressed. I have changed my self talk to positive accolades & I am grateful that I am able to pick up dog 💩. LOL ... bet you never thought you’d read anyone write that eh!😬😉💕