Natalie Heise The Doctor just took me off oxygen because I did the walk test and never went below 93 but like you I still feel winded and out of breath when I do housework, etc. I have the type of PH that medicine doesn't help and the one question I had was if I go off oxygen is it going to further damage the arteries in my lungs, never got a answer. I just had a new Aortic Valve put into my Mitral Valve by Transcatheter because the pressure in my lungs was to high to do open heart surgery again. Pressure went down to 70 after surgery and after a Echo Gram 2 weeks ago the pressure went down to 50. Normal is 25. I still use oxygen when I sleep until they test me over night with a Oximeter. So I understand how you feel. Not fun having PH. I wish you well and hope you find a answer to your shortness of breath.
Hello, I just joined today. Was just diagnosed with PH this week. That was one of my first-noticed symptoms. I just couldn't understand why after bending over I was short of breath.
I get short of breath when bending over to pick up something. I purchased a hand grabber reaching tool and it works great! I sometimes have bi-lateral pain underneath my breastplate that radiates to my back. The pain is really bad when I get out of bed in the morning or getting up from a seated position. Someone on this forum suggested taking slow deep breathes and that seemed to help decrease the pain. Thanks for the suggestion.
I also get sob on bending with pain it's a real problem find it hard to do household chores. My PAH is managed ATM with oxygen and I had some weight loss my doctors are extremely happy with it they gave me 5 years when first diagnosed but now if I keep the weight off and try and loss more they say now I got longer its the COPD giving me the problem and diabetes u just can't win lol
Nancy, I was told not to bend over, It squeezes the pulmonary valve. I have a grab it and use a lot. I know sometimes we just have to bend over. I also use my c-pap during the day. I am now waiting for insurance to ok a Bi-pap. I can't do much house work anymore. Cannot change bed linens. I sit in my walker to cook do dishes, and mop my floor, some dusting..
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