Natalie Heise The Doctor just took me off oxygen because I did the walk test and never went below 93 but like you I still feel winded and out of breath when I do housework, etc. I have the type of PH that medicine doesn't help and the one question I had was if I go off oxygen is it going to further damage the arteries in my lungs, never got a answer. I just had a new Aortic Valve put into my Mitral Valve by Transcatheter because the pressure in my lungs was to high to do open heart surgery again. Pressure went down to 70 after surgery and after a Echo Gram 2 weeks ago the pressure went down to 50. Normal is 25. I still use oxygen when I sleep until they test me over night with a Oximeter. So I understand how you feel. Not fun having PH. I wish you well and hope you find a answer to your shortness of breath.
My PH team discourages bending of any kind. I try to limit the amount I bend. I have a few claw things to pick up stuff from floor etc. Also told not to push, pull or lift anything over 10-20 pounds. Also when walking not to move arms back and forth. The above actions makes your heart work harder,
Nancy, I was told not to bend over, It squeezes the pulmonary valve. I have a grab it and use a lot. I know sometimes we just have to bend over. I also use my c-pap during the day. I am now waiting for insurance to ok a Bi-pap. I can't do much house work anymore. Cannot change bed linens. I sit in my walker to cook do dishes, and mop my floor, some dusting..
Yes! Every doctor is very passive about these symptoms. I sometimes have the same pain when rising from a laying position.