Remodulin can be administered subq with a pump or by by direct IV. The subq may be uncomfortable or painful for some while IV runs a higher risk of infection at the site.
Side effects usually leave after your body adjusts bit can include headache, flushing, joint pain, and diarrhea. The diarrhea likely does not go away and requires Imodium to control.
I am also on the Remodulin pump. Been on it for 2 yrs now.. Befor i left thw hospital. Because i have severe PAH the dr wanted me to be on the IV for it but i talkes him into lettin me try the pump first. It has worked pretty well but i have noticed a change that i have to talk to dr about nxt time i see him. My sites are not lasting that long like they should. Im lucky if it last 2 or 3 weeks now then i have to move it again and the medicine it gives me is not working correctly i think..
dr want me on that but scared of the iv stuff.. Are you on it now?
I have been on Remodulin for 2 yrs now , it has its ups and downs. A lot of site pain for me I still only have one place that works for me. Nurses dind it kinda strange i mostly put site on my left Bicep , but not the back side of my same arm. Funny thing is that on the back of my arm it feels like a 1000 bee stings or worse and swells up . But it has stabilized my P H and seems to have slowed just a little bit
I've been on Remodulin for years. The subq site can become infected easily, I had to have an Incision and Drainage done a year ago. The site hurts/itches each time you have to change it. I've not had the IV one but maybe it will work for you. Good luck.