My PH was found on echo. I have h Ehrles-Danlos, lymphedema, sleep apnea, hypothyroidism, and some other EDS co-morbidities. I am confused, though. I had a cath, ct, I have an implantable loop cardiac monitor to catch any issues there, some dysautonomia issues, but other than the echo finding PH everything else was fine.
My cardio sent me to the pulmonologist to see if he would give meds since I can't walk far or stay standing long, but am okay sitting and short walking like around the house… read more
Ruth mark. Change both Dr's bcuz neither one of them seem to want to treat you. Being a retired RN, I will tell you not all pulmonologist know a lot about PH. You might have to research pulmonologist in your area that deal with PH. It's worth your time to get the best Dr who will put you on at least inhalers and give you a 6 minute walking test to see if you need oxygen.
Praying for you to get good Dr's and feel better soon.
RuthMak. I have added you to my team. My PH was found by a right heart cath. My 02 was down to 90 and she said I needed to see my pulmonary Dr. He did a CT of the lungs and found Interstital lung disease with honeycombing. My cardiologist put me on a blood pressure med for my lungs and my pulmo put me on oxygen 24/7 and 3 inhalers. My lungs are so bad that meds will not help them. If yourl ph is not bad like mine your pulmo should pput you on meds to keep the ph from going higher. If you are not happy with your pulmo, you need to change Dr's. It really takes both of those DR's to treat you. Your cardio should do RHC and your pulmo should do the oxygen and meds. Good luck and be proactive in your healthcare.
What P Smith said. My first pulmonologist didn't set up or tell me much then I moved to AZ and the pulmonologist I got has been treating PAH for many years. He works with my cardio and provides meds which have helped me. . I was truly amazed at my 2nd visit when pulmonologist told me Cardio would be doing a Rt. heart cath to determine exact pressures, so we could get a full treatment plan in place. I didn't know how to act having them communicate😁
Oh there are several meds u can take for ph ...it's no way u should walk around ever feeling exhausted all day n tired n shortness of breath I would say see another doctor asap
I ask my pulmonoligst the same question and he said to talk to my Cardiogist I have an appointment on August 2nd. I think the Pulmonoligst and Cardiogist should be working as a team I request my records be shared so each doctor knows what's going on. I personally feel this is the best way.
We never share your personal information with anyone.